Evidence map›Paper›PMID 32759247›Full record

ArticleBMJ open2020

Barriers and facilitators to optimal supportive end-of-life palliative care in long-term care facilities: a qualitative descriptive study of community-based and specialist palliative care physicians' experiences, perceptions and perspectives.

Patricia Harasym, Sarah Brisbin, Misha Afzaal, Aynharan Sinnarajah, Lorraine Venturato, Patrick Quail, Sharon Kaasalainen, Sharon E Straus, Tamara Sussman, Navjot Virk and 1 more

Open access · goldAbstract read
In one paragraph

Article in BMJ open, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 35 papers, 2 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
35citing papers in PubMed, 2 pooled it
7.2field-weighted citation impact, top 2% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

35 citing papers in PubMed, 2 syntheses or guidelines pooled it, 74 citations in OpenAlex.

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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

11 authors at 5 institutions in 2 countries.

Patricia HarasymCumming School of Medicine, University of Calgary, Calgary, Alberta, Canada.ORCID 0000-0003-4260-5270
Sarah BrisbinCumming School of Medicine, University of Calgary, Calgary, Alberta, Canada.
Misha AfzaalFaculty of Science (Undergraduate), University of British Columbia, Vancouver, British Columbia, Canada.
Aynharan SinnarajahCumming School of Medicine, University of Calgary, Calgary, Alberta, Canada.
Lorraine VenturatoFaculty of Nursing, University of Calgary, Calgary, Alberta, Canada.
Patrick QuailCumming School of Medicine, University of Calgary, Calgary, Alberta, Canada.
Sharon KaasalainenSchool of Nursing, McMaster University, Hamilton, Ontario, Canada.
Sharon E StrausSt. Michael's Hospital, University of Toronto, Toronto, Ontario, Canada.
Tamara SussmanSchool of Social Work, McGill University, Montreal, Quebec, Canada.
Navjot VirkBrenda Strafford Foundation, Calgary, Alberta, Canada.
Jayna Holroyd-LeducCumming School of Medicine, University of Calgary, Calgary, Alberta, Canada jmholroy@ucalgary.ca.
University of Calgary · CAMcGill University · CAMcMaster University · CASt. Michael's Hospital · CAUniversity of British Columbia · CA

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

objectiveThe COVID-19 pandemic has highlighted ongoing challenges to optimal supportive end-of-life care for adults living in long-term care (LTC) facilities. A supportive end-of-life care approach emphasises family involvement, optimal symptom control, multidisciplinary team collaboration and death and bereavement support services for residents and families. Community-based and palliative care specialist physicians who visit residents in LTC facilities play an important role in supportive end-of-life care. Yet, perspectives, experiences and perceptions of these physicians remain unknown. The objective of this study was to explore barriers and facilitators to optimal supportive end-of-life palliative care in LTC through the experiences and perceptions of community-based and palliative specialist physicians who visit LTC facilities.

designQualitative study using semi-structured interviews, basic qualitative description and directed content analysis using the COM-B (capability, opportunity, motivation - behaviour) theoretical framework.

settingResidential long-term care.

participants23 physicians who visit LTC facilities from across Alberta, Canada, including both in urban and rural settings of whom 18 were community-based physicians and 5 were specialist palliative care physicians.

resultsMotivation barriers include families' lack of frailty knowledge, unrealistic expectations and emotional reactions to grief and uncertainty. Capability barriers include lack of symptom assessment tools, as well as palliative care knowledge, training and mentorship. Physical and social design barriers include lack of dedicated spaces for death and bereavement, inadequate staff, and mental health and spiritual services of insufficient scope for the population.

conclusionFindings reveal that validating families' concerns, having appropriate symptom assessment tools, providing mentorship in palliative care and adapting the physical and social environment to support dying and grieving with dignity facilitates supportive, end-of-life care within LTC.

Indexed as

Long-Term CarePandemicsPhysiciansSkilled Nursing FacilitiesAdultAgedAlbertaAttitude of Health PersonnelBetacoronavirusCoronavirus InfectionsCOVID-19FamilyFemaleFrail ElderlyFrailtyHealth Services Needs and Demandadult palliative caregeriatric medicinequalitative research

Identifiers

PMID32759247
PMCPMC7409966
OpenAlexW3047595444

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.