ArticleCardiology in the young2020
Supporting parenting during infant hospitalisation for CHD.
Article in Cardiology in the young, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 10 papers.
What it found
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The trial behind it
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Who cites it
10 citing papers in PubMed, 20 citations in OpenAlex.
- Update on Education for Families and Patients With Pediatric Heart Disease: A Focus on Technological Advancements, Procedures, and Transitions of Care: A Scientific Statement From the American Heart Association.Journal of the American Heart Association · 2026Review
- Wellbeing and quality of life among parents of individuals with Fontan physiology.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2025Article
- Loss and Grief in Parents of Children Hospitalized for Congenital Heart Disease.Hospital pediatrics · 2025Article
- Parent communication with care teams and preparation for family meetings in the paediatric cardiac ICU: a qualitative study.Cardiology in the young · 2024Article
- Mental Health Symptoms in Parents of Infants 3 Months After Discharge Following Neonatal Cardiac Surgery.American journal of critical care : an official publication, American Association of Critical-Care Nurses · 2024Article
- Developmental care pathway for hospitalised infants with CHD: on behalf of the Cardiac Newborn Neuroprotective Network, a Special Interest Group of the Cardiac Neurodevelopmental Outcome Collaborative.Cardiology in the young · 2023Article
- Barriers and facilitators to discussing parent mental health within child health care: Perspectives of parents raising a child with congenital heart disease.Journal of child health care : for professionals working with children in the hospital and community · 2023Article
- Developmental Care for Hospitalized Infants With Complex Congenital Heart Disease: A Science Advisory From the American Heart Association.Journal of the American Heart Association · 2023Article
- Parental post-traumatic stress, overprotective parenting, and emotional and behavioural problems for children with critical congenital heart disease.Cardiology in the young · 2022Article
- Topical Review: Crowdsourcing as a Novel Approach to Qualitative Research.Journal of pediatric psychology · 2021Article
Corrections and comments
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Authors and funding
11 authors at 7 institutions in 1 country.
Funding
Abstract
objectiveTo characterise the parenting priorities of mothers and fathers of infants hospitalised with CHD and generate recommendations to support parenting during infant hospitalisation. STUDY
designThrough online crowdsourcing, an innovative research methodology to create an online community to serve as a research sample, 79 parents of young children with CHD responded to questions about parenting during hospitalisation via private social networking site. Responses were analysed using qualitative research methods.
resultsThree broad themes were identified: (1) establishing a bond with my baby, (2) asserting the parental role, and (3) coping with fear and uncertainty. Parents value provider support in restoring normalcy to the parenting experience during infant hospitalisation.
conclusionsCare teams can support parenting during infant hospitalisation by promoting parents' roles as primary caretakers and decision-makers and attending to the emotional impact of infant hospitalisation on the family.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.