Observational studyBMC cancer2020
Sexual dysfunction and fertility-related distress in young adults with cancer over 5 years following diagnosis: study protocol of the Fex-Can Cohort study.
Observational study in BMC cancer, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 23 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
23 citing papers in PubMed, 28 citations in OpenAlex.
- The role of a discussion forum within a web-based psychoeducational intervention focusing on sex and fertility-What do young adults communicate?Cancer medicine · 2023Trial
- Sexual function and activity in young adults with a primary brain tumor-A population-based longitudinal study.Neuro-oncology practice · 2026Article
- Body Image Concerns and Associated Factors up to Five Years After Cancer in Young Adulthood: A Swedish Longitudinal Population-Based Study.Psycho-oncology · 2026Article
- Developing the parenting concerns scale for cancer survivors and assessment of its validity and reliability in China.BMC psychology · 2026Article
- Navigating Long-Term Co-Creative Research With Young Adults Diagnosed With Cancer: A Qualitative Study.Health expectations : an international journal of public participation in health care and health policy · 2026Article
- Self-disclosure and reproductive concerns among breast cancer female patients: the chain mediation model of couples' cancer-related communication problems and relationship intimacy.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2025Article
- Anxiety and Depression Trajectories in Young Adults Up to 5 Years After Being Diagnosed With Cancer.Cancer medicine · 2025Article
- An examination of sexual dysfunction in a cohort of women cancer survivors.Cancer survivorship research & care · 2025Article
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- Health-related quality of life and supportive care needs in young adult cancer survivors-a longitudinal population-based study.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2024Article
- Translation and psychometric evaluation of the Korean version of the Reproductive Concerns After Cancer Scale (RCAC).BMC nursing · 2024Article
- Testicular Cancer Treatments and Sexuality: A Narrative Review.Medicina (Kaunas, Lithuania) · 2024Review
- Sexual life in adults treated for brain tumors: a retrospective study.Frontiers in oncology · 2024Article
- Fertility Preservation in Individuals with Cancer: A Joint Position Statement from APHON, CANO/ACIO, and ONS.Canadian oncology nursing journal = Revue canadienne de nursing oncologique · 2024Article
- Do young adults with cancer receive information about treatment-related impact on sex life? Results from a population-based study.Cancer medicine · 2023Article
- Psychometric evaluation of the Swedish version of the PROMIS Sexual Function and Satisfaction Measures in clinical and nonclinical young adult populations.Sexual medicine · 2023Article
- Reproductive concerns and contributing factors in women of childbearing age with systemic lupus erythematosus.Clinical rheumatology · 2022Article
- Translation and validation of Persian version of sexual function: vaginal changes questionnaire (SVQ) for women with gynecologic cancers.BMC women's health · 2022Article
- Efficacy of a Web-Based Psychoeducational Intervention for Young Adults With Fertility-Related Distress Following Cancer (Fex-Can): Randomized Controlled Trial.JMIR cancer · 2022Article
Corrections and comments
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Authors and funding
5 authors at 3 institutions in 2 countries.
Funding
Abstract
backgroundThere is a lack of firm knowledge regarding sexual problems and fertility-related distress in young adults following a diagnosis with cancer. Establishing such understanding is essential to identify patients in need of specific support and to develop cancer care accordingly. This study protocol describes the Fex-Can Cohort study, a population-based prospective cohort study investigating sexual dysfunction and fertility-related distress in young adults diagnosed with cancer in Sweden. The primary objective of the study is to determine the prevalence and predictors of sexual dysfunction and fertility-related distress following a cancer diagnosis in young adulthood compared to prevalence rates for the general population. Further aims are to investigate the trajectories of these issues over time, the co-existence between sexual dysfunction and fertility-related distress, and the relation between these issues and body image, anxiety and depression, health-related quality of life, self-efficacy related to sexuality and fertility, and fertility-related knowledge.
methodsParticipants in the Fex-Can Cohort will be identified via the Swedish National Quality Registries for Brain Tumors, Breast Cancer, Gynecological Oncology, Lymphoma, and Testicular Cancer. All patients diagnosed at the ages of 18-39, during a period of 18 months, will be invited to participate. Established instruments will be used to measure sexual function (PROMIS SexFS), fertility-related distress (RCAC), body image (BIS), anxiety and depression (HADS), and health-related quality of life (QLQ-C30); Self-efficacy and fertility-related knowledge will be assessed by study-specific measures. The survey will be administered to participants at baseline (approximately 1.5 year after diagnosis) and at 3 and 5 years post-diagnosis. Registry data will be used to collect clinical variables. A comparison group of 2000 young adults will be drawn from the Swedish population register (SPAR) and subsequently approached with the same measures as the cancer group. DISCUSSION: The study will determine the prevalence and predictors of sexual dysfunction and fertility-related distress in young men and women with cancer. The findings will form a basis for developing interventions to alleviate sexual problems and fertility-related distress in young adults with cancer in the short and long term.
trial registrationThis is an observational cohort study and clinical trial registration was therefore not obtained.
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