ArticleBMC palliative care2020
Differing needs of mothers and fathers during their child's end-of-life care: secondary analysis of the "Paediatric end-of-life care needs" (PELICAN) study.
Article in BMC palliative care, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 9 papers, 1 of them a synthesis that pooled it.
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
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Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
9 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Termination of pregnancy for fetal anomaly: a systematic review of the healthcare experiences and needs of parents.BMC pregnancy and childbirth · 2022Pooled it
- What are fathers' experiences of neonatal-perinatal palliative care? A Scoping review.BMC palliative care · 2026Article
- The impact of a minor child's cancer diagnosis on parental work: a scoping review.Revista da Escola de Enfermagem da U S P · 2026Article
- Evaluation of Satisfaction With Care in Paediatric Intensive Care Units: Swedish Parents' Perspective.Nursing in critical care · 2025Article
- Father participation in the care of a critically ill child: a scoping review.Revista da Escola de Enfermagem da U S P · 2025Article
- Psychological impacts of maternal migration on left-behind children: a cross-cultural review.Frontiers in psychology · 2024Review
- Context of a neonatal death affects parental perception of end-of-life care, anxiety and depression in the first year of bereavement.BMC palliative care · 2023Observational
- Parental bereavement - impact of death of neonates and children under 12 years on personhood of parents: a systematic scoping review.BMC palliative care · 2021Article
- Quality Indicators in Pediatric Palliative Care: Considerations for Latin America.Children (Basel, Switzerland) · 2021Review
Corrections and comments
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Authors and funding
4 authors.
Funding
Abstract
backgroundMothers and fathers are severely challenged when providing care for their terminally ill child at end of life. Caregiving needs have been studied predominantly in mothers. Differences in caregiving needs between mothers and fathers during their child's end of life have not, however, been explored so far. This knowledge is of importance to best meet individual parental needs in paediatric end-of-life care.
methodsSecondary analysis of a quantitative survey on parental needs during their child's last 4 weeks of life, collected in the Swiss multicentre "Paediatric End-of-Life Care Needs" (PELICAN) study. Caregiving needs of mothers and fathers (parental dyad) who had lost a child due to a cardiological, neurological or oncological disease or during the neonatal period in the years 2011-2012 were retrospectively assessed using a questionnaire representing six evidence-based quality domains of paediatric palliative and end-of-life care.
resultsSeventy-eight parental dyads were included in this analysis. Differences between mothers and fathers were mostly found around needs to be supported as a family. In all, 28 out of 34 needs-related questionnaire items were scored higher by mothers than by fathers, indicating higher importance for that need to be met. The results indicate that these differences might relate to different caregiving roles and gender-specific coping strategies.
conclusionsTo best meet parental needs in paediatric end-of-life care, particular attention should be paid to both mothers and fathers and their specific caregiving roles, as differences in these roles might influence their needs in this exceptional situation. Therefore, healthcare professionals should identify how parental dyads mutually navigate care for their sick child to best meet their needs in support. Additionally, mothers and fathers should be supported in their individual coping strategies.
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