ArticleInternational journal of environmental research and public health2020
Case Ascertainment on Australian Registers for Acute Rheumatic Fever and Rheumatic Heart Disease.
Article in International journal of environmental research and public health, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 7 papers.
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Who cites it
7 citing papers in PubMed.
- Cardiovascular outcomes for Australian women with rheumatic heart disease during pregnancy: A retrospective linked data analysis, 2002-2017.Acta obstetricia et gynecologica Scandinavica · 2026Article
- The epidemiology of acute rheumatic fever and rheumatic heart disease in Queensland, 2017-2021: a population-level cohort study using linked administrative data.The Medical journal of Australia · 2025Article
- Epidemiological and Clinical Manifestations of Acute Rheumatic Fever in Far North Queensland, Australia.Pathogens (Basel, Switzerland) · 2025Article
- Connections Reduce Rheumatic Heart Disease-Related Mortality in Western Australia: A Mixed Methods Study.The Australian journal of rural health · 2025Article
- Predicting ICU Mortality in Rheumatic Heart Disease: Comparison of XGBoost and Logistic Regression.Frontiers in cardiovascular medicine · 2022Article
- Long-term outcomes following rheumatic heart disease diagnosis in Australia.European heart journal open · 2021Article
- Contemporary Incidence and Prevalence of Rheumatic Fever and Rheumatic Heart Disease in Australia Using Linked Data: The Case for Policy Change.Journal of the American Heart Association · 2020Article
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Authors and funding
7 authors.
Funding
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Abstract
In Australia, disease registers for acute rheumatic fever (ARF) and rheumatic heart disease (RHD) were previously established to facilitate disease surveillance and control, yet little is known about the extent of case-ascertainment. We compared ARF/RHD case ascertainment based on Australian ARF/RHD register records with administrative hospital data from the Northern Territory (NT), South Australia (SA), Queensland (QLD) and Western Australia (WA) for cases 3-59 years of age. Agreement across data sources was compared for persons with an ARF episode or first-ever RHD diagnosis. ARF/RHD registers from the different jurisdictions were missing 26% of Indigenous hospitalised ARF/RHD cases overall (ranging 17-40% by jurisdiction) and 10% of non-Indigenous hospitalised ARF/RHD cases (3-28%). The proportion of hospitalised RHD cases (36%) was half the proportion of hospitalised ARF cases (70%) notified to the ARF/RHD registers. The registers were found to capture few RHD cases in metropolitan areas (SA Metro: 13%, QLD Metro: 35%, WA Metro: 14%). Indigenous status, older age, comorbidities, drug/alcohol abuse and disease severity were predictors of cases appearing in the hospital data only (
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