ArticleArthritis care & research2021
Impact of Limited Health Literacy on Patient-Reported Outcomes in Systemic Lupus Erythematosus.
Article in Arthritis care & research, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 34 papers, 1 of them a synthesis that pooled it.
What it found
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The trial behind it
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Who cites it
34 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Low income and health literacy: a systematic scoping review.Archives of public health = Archives belges de sante publique · 2025Pooled it
- Trial
- Quantitative assessment of visual designs for communicating patient-reported outcomes in breast cancer care to patients.Journal of patient-reported outcomes · 2025Trial
- Adverse Pregnancy Outcomes and Health-Related Social Needs Among Parous Women.JAMA network open · 2026Article
- Differential item functioning of PROMIS Sleep Disturbance-Short Form 8a across levels of health literacy in a community sample of adults.Psychological assessment · 2026Article
- Evaluating the Association Between Health Literacy and Patient-Reported Outcome Measures After Distal Radius Fracture.The Journal of hand surgery · 2026Article
- Article
- Exploring patient interpretation of an orthosis adherence checklist: A cognitive interview study.PloS one · 2026Article
- Understanding Contributors of Resilience in Youth With Childhood-Onset Systemic Lupus Erythematosus Through a Socioecological Lens: A Mixed-Methods Study.Arthritis care & research · 2025Article
- Organizational Climate and Decision Aid Sustainability in Lupus Care: Mixed Methods Study.JMIR formative research · 2025Article
- Does Patient Health Literacy Affect Patient Reported Outcome Measure Completion Method in Orthopaedic Patients?Geriatric orthopaedic surgery & rehabilitation · 2025Article
- Knowledge, attitudes, and practices toward biologics among systemic lupus erythematosus patients: a cross-sectional study.Frontiers in public health · 2025Article
- Association of Limited Health Literacy With Clinical and Patient-Reported Outcomes in Individuals With Systemic Lupus Erythematosus.ACR open rheumatology · 2024Article
- Understanding Health Equity in Patient-Reported Outcomes.The journal of allergy and clinical immunology. In practice · 2024Review
- Use and Utility of Patient After-Visit Instructions at a University Rheumatology Outpatient Clinic: Status and Randomized Prospective Pilot Intervention Study.ACR open rheumatology · 2024Article
- Impact of Health Literacy on Patient-Reported Outcomes in Benign Gynecology: A Systematic Review.Cureus · 2024Review
- Economic insecurities and patient-reported outcomes in patients with systemic lupus erythematosus in the USA: a cross-sectional analysis of data from the California Lupus Epidemiology Study.The Lancet. Rheumatology · 2024Article
- Knowledge, Attitudes, and Practices Among Patients with Systemic Lupus Erythematosus Toward Disease Management and Biologic Therapy.Journal of multidisciplinary healthcare · 2024Article
- Relationship between health literacy and health-related quality of life in Korean adults with chronic diseases.PloS one · 2024Article
- Assessment Tools for Measuring Health Literacy and Digital Health Literacy in a Hospital Setting: A Scoping Review.Healthcare (Basel, Switzerland) · 2023Article
Corrections and comments
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Authors and funding
8 authors.
Funding
Abstract
objectiveHealth disparities in patient-reported outcomes by income and education are well documented; however, the impact of health literacy on patient-reported outcomes has received less attention. We examined independent effects of income, education, and health literacy on patient-reported outcomes in systemic lupus erythematosus (SLE).
methodsData from the California Lupus Epidemiology Study (n = 323 participants) were used. Health literacy was assessed with a validated 3-item measure (ability to understand written information, reliance on others to understand written information, confidence in completing written forms). Patient-reported outcomes were administered by interview in English, Spanish, Cantonese, or Mandarin. Generic and disease-specific patient-reported outcomes were examined using the following: 10 Patient-Reported Outcomes Measurement Information System (PROMIS) short forms; the 8 Short Form 36 (SF-36) health survey subscales; and 3 patient-reported SLE disease activity and damage measures. We conducted 2 sets of multivariable analyses: the first examined education, income, or health literacy individually; the second included all 3 simultaneously. All multivariable models included age, sex, race/ethnicity, language, disease duration, and physician-assessed disease activity and damage.
resultsMore than one-third of participants (38%) had limited health literacy (LHL), including >25% with greater than high school education. In multivariable analyses simultaneously considering education, income, and health literacy, LHL was associated with significantly worse scores on all patient-reported outcomes except disease damage. In contrast, disparities by income were seen in only 3 PROMIS scales, 3 SF-36 subscales, and 1 disease activity measure. No disparities by education level were noted.
conclusionWe found significantly worse patient-reported outcome scores among individuals with LHL, even after controlling for disease activity and damage. Whether disparities are due to actual differences in health or measurement issues requires further study.
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