Evidence map›Paper›PMID 32738885›Full record

ArticleBMC women's health2020

'Flower of the body': menstrual experiences and needs of young adolescent women with cerebral palsy in Bangladesh, and their mothers providing menstrual support.

R Power, K Wiley, M Muhit, E Heanoy, T Karim, N Badawi, G Khandaker

Open access · goldAbstract read
In one paragraph

Article in BMC women's health, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 11 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
11citing papers in PubMed, 1 pooled it
0.8field-weighted citation impact, top 17% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

11 citing papers in PubMed, 1 synthesis or guideline pooled it, 23 citations in OpenAlex.

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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors at 2 institutions in 2 countries.

R PowerDiscipline of Child and Adolescent Health, Sydney Medical School, University of Sydney, Cnr Hawkesbury Rd and Hainsworth St, Locked Bag 4001, Westmead, NSW, 2145, Australia. rpow8982@uni.sydney.edu.au.ORCID 0000-0001-9434-3941
K WileySydney School of Public Health, Faculty of Medicine and Health, University of Sydney, Sydney, NSW, Australia.ORCID 0000-0001-9699-7754
M MuhitAsian Institute of Disability and Development (AIDD), University of South Asia, Dhaka, Bangladesh.
E HeanoyAsian Institute of Disability and Development (AIDD), University of South Asia, Dhaka, Bangladesh.ORCID 0000-0002-4817-9922
T KarimDiscipline of Child and Adolescent Health, Sydney Medical School, University of Sydney, Cnr Hawkesbury Rd and Hainsworth St, Locked Bag 4001, Westmead, NSW, 2145, Australia.ORCID 0000-0003-1480-8409
N BadawiDiscipline of Child and Adolescent Health, Sydney Medical School, University of Sydney, Cnr Hawkesbury Rd and Hainsworth St, Locked Bag 4001, Westmead, NSW, 2145, Australia.
G KhandakerDiscipline of Child and Adolescent Health, Sydney Medical School, University of Sydney, Cnr Hawkesbury Rd and Hainsworth St, Locked Bag 4001, Westmead, NSW, 2145, Australia.ORCID 0000-0002-0661-4113
The University of Sydney · AUUniversity of South Asia · BD

Funding

Cerebral Palsy Alliance Research Foundation CDF0116Cerebral Palsy Alliance Research Foundation CDG04117Cerebral Palsy Alliance Research Foundation CDG04617Cerebral Palsy Alliance Research Foundation PG3615
6 · The paper itself

Abstract

backgroundThis study offers voice to young adolescent women with cerebral palsy (CP) in Bangladesh as they describe their menstrual experiences and needs, and their mothers providing menstrual support.

methodSemi-structured focus groups with adolescents with CP, and separately their mother. Data was analysed using a material discursive framework and drawing on feminist disability theory. Participants were recruited from the Bangladesh CP Register (BCPR); a population-based surveillance of children and adolescents with CP in rural Bangladesh.

resultsParticipants were 45 women including 12 female adolescents with CP and 33 female caregivers. Participants reported a wide range of experiences and needs; menarche acted as a gateway to menstrual information although for some a discourse of silence prevailed due to exclusion from peer and familial networks. Menstruation was discursively constructed as a sign of 'female maturation' marked by an expectation of 'independence', required for acceptance into socially valued adult roles, and was positioned alongside increased vulnerability to sexual abuse. Young adolescent women with CP were expected to 'quietly endure' the material aspects of menstruation although unmanaged pain and distress were described. Mothers reported an imperative for meeting their adolescent's menstrual needs however this role was discursively positioned as 'painful', 'irritating' and 'shameful', in part due to an absence of affordable, functional menstrual resources.

conclusionThe findings of the present study provide motivation for disability services in Bangladesh to account for the menstrual needs of young adolescent women with CP within service delivery through strategies such as providing menstrual education and by embedding value in constructs such as 'interdependence'. Moreover, interventions focused on alleviating menstrual pain among young adolescent women with CP as well as those targeted to alleviate distress among mothers providing menstrual care are required. Finally, policy responses are required to ensure that 'inclusive development' considers the needs of menstruating women with disability.

Indexed as

Health Knowledge, Attitudes, PracticeMothersSocial SupportAdolescentBangladeshCerebral PalsyChildFemaleFocus GroupsHumansMenstruationQualitative ResearchReproductive HealthSexual HealthAdolescentBangladeshCerebral palsyDisabilityGlobal SouthLow- and middle-income countryMenstruationReproductive and sexual healthTeenager

Identifiers

PMID32738885
PMCPMC7395369
OpenAlexW3046445093

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.