ArticleBMC palliative care2020
"Transition from children's to adult services for adolescents/young adults with life-limiting conditions: developing realist programme theory through an international comparison".
Article in BMC palliative care, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 10 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
10 citing papers in PubMed.
- Factors Influencing the Implementation of Transitional Care for Adolescents With Profound Intellectual and Multiple Disabilities: Experiences of Dutch Healthcare Professionals.Journal of intellectual disability research : JIDR · 2026Article
- Transition from adolescence to adulthood: Dedicated health services for young people with epilepsy in Italy.Epileptic disorders : international epilepsy journal with videotape · 2026Observational
- Parental experiences transitioning neurological impaired young adults to adult services.Health care transitions · 2026Article
- Action priorities to facilitate planning of the transition to adulthood of young people with profound intellectual disability.International journal of developmental disabilities · 2026Article
- The Need for Pediatric Palliative Care in Romania: A Retrospective Study (2022-2023) Based on Quantitative Research and Analysis of Secondary Statistical Data.Medicina (Kaunas, Lithuania) · 2025Article
- Article
- Where Do Neurodevelopmental Disorders Go? Casting the Eye Away from Childhood towards Adulthood.Healthcare (Basel, Switzerland) · 2023Article
- A commentary on the healthcare transition policy landscape for youth with disabilities or chronic health conditions, the need for an inclusive and equitable approach, and recommendations for change in Canada.Frontiers in rehabilitation sciences · 2023Article
- Mapping frameworks and approaches to measuring the quality of transition support services for young people with intellectual and developmental disabilities.Frontiers in rehabilitation sciences · 2023Review
- A Comparison of Young Adults With and Without Cancer in Concurrent Hospice Care: Implications for Transitioning to Adult Health Care.Journal of adolescent and young adult oncology · 2022Article
Corrections and comments
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Authors and funding
5 authors.
Funding
Abstract
backgroundManaging transition of adolescents/young adults with life-limiting conditions from children's to adult services has become a global health and social care issue. Suboptimal transitions from children's to adult services can lead to measurable adverse outcomes. Interventions are emerging but there is little theory to guide service developments aimed at improving transition. The Transition to Adult Services for Young Adults with Life-limiting conditions (TAYSL study) included development of the TASYL Transition Theory, which describes eight interventions which can help prepare services and adolescents/young adults with life-limiting conditions for a successful transition. We aimed to assess the usefulness of the TASYL Transition Theory in a Canadian context to identify interventions, mechanisms and contextual factors associated with a successful transition from children's to adult services for adolescents/young adults; and to discover new theoretical elements that might modify the TASYL Theory.
methodsA cross-sectional survey focused on organisational approaches to transition was distributed to three organisations providing services to adolescents with life-limiting conditions in Toronto, Canada. This data was mapped to the TASYL Transition Theory to identify corresponding and new theoretical elements.
resultsInvitations were sent to 411 potentially eligible health care professionals with 56 responses from across the three participating sites. The results validated three of the eight interventions: early start to the transition process; developing adolescent/young adult autonomy; and the role of parents/carers; with partial support for the remaining five. One new intervention was identified: effective communication between healthcare professionals and the adolescent/young adult and their parents/carers. There was also support for contextual factors including those related to staff knowledge and attitudes, and a lack of time to provide transition services centred on the adolescent/young adult. Some mechanisms were supported, including the adolescent/young adult gaining confidence in relationships with service providers and in decision-making.
conclusionsThe Transition Theory travelled well between Ireland and Toronto, indicating its potential to guide both service development and research in different contexts. Future research could include studies with adult service providers; qualitative work to further explicate mechanisms and contextual factors; and use the theory prospectively to develop and test new or modified interventions to improve transition.
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