Evidence map›Paper›PMID 32729446›Full record

ArticleInternational psychogeriatrics2020

Living with dementia: increased level of caregiver stress in times of COVID-19.

Gabriela Cohen, María Julieta Russo, Jorge A Campos, Ricardo F Allegri

Registry-linked trialAbstract read
In one paragraph

Article in International psychogeriatrics, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT05249868 (Multicentre Study on the Impact of the SARS-CoV-2 Pandemic on the Health Status of People Aged 75 and Over and Their Caregivers), which is not on this map. Cited by 111 papers, 8 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
111citing papers in PubMed, 8 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT05249868 completednot on this mapstarted 2022, after this paper: background citation

Multicentre Study on the Impact of the SARS-CoV-2 Pandemic on the Health Status of People Aged 75 and Over and Their Caregivers (CUIDAMOS+75 Project)

Typeobservational_patient_registrySponsorGerencia de Atención Primaria, MadridRan2022 to 2025Enrolled1,035ConditionsAging, SARS-CoV-2 Infection, Caregivers, FrailtyArmsExposure SARS-CoV-2 Infection
3 · Its place in the literature

Who cites it

111 citing papers in PubMed, 8 syntheses or guidelines pooled it.

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  7. Telemedicine and Dementia Care: A Systematic Review of Barriers and Facilitators.Journal of the American Medical Directors Association · 2021
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  11. Caring for a Relative With Dementia in Long-Term Care During COVID-19.Journal of the American Medical Directors Association · 2022
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  12. Caregivers serving as confidants: relationship correlates and well-being by care-recipients' dementia status.The journals of gerontology. Series B, Psychological sciences and social sciences · 2026
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51 more citing papers are in PubMed but not listed here.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

4 authors.

Gabriela CohenFundación para la Lucha contra las Enfermedades Neurológicas de la Infancia, Memory and Ageing Center, Department of Cognitive Neurology, Neuropsychology and Neuropsychiatry (FLENI), Buenos Aires, Argentina.
María Julieta RussoFundación para la Lucha contra las Enfermedades Neurológicas de la Infancia, Memory and Ageing Center, Department of Cognitive Neurology, Neuropsychology and Neuropsychiatry (FLENI), Buenos Aires, Argentina.
Jorge A CamposFundación para la Lucha contra las Enfermedades Neurológicas de la Infancia, Memory and Ageing Center, Department of Cognitive Neurology, Neuropsychology and Neuropsychiatry (FLENI), Buenos Aires, Argentina.
Ricardo F AllegriFundación para la Lucha contra las Enfermedades Neurológicas de la Infancia, Memory and Ageing Center, Department of Cognitive Neurology, Neuropsychology and Neuropsychiatry (FLENI), Buenos Aires, Argentina.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

COVID-19 pandemic in Argentina has affected the care of older adults with dementia deeply. Our objective was to study how the obligatory social isolation affected stress caregiver and burden of care of family members of subjects living with dementia in the community after the initial 4 weeks of quarantine in our setting. We did a questionnaire survey among 80 family caregivers of persons with Alzheimer's disease (AD) or related dementia collected on April 2020. We designed a visual analog scale to test the level of the burden of care. Characteristics of people with dementia and their caregivers were analyzed with descriptive (mean, standard deviation, frequency and percent) and inferential statistics (chi-square test). The sample included older adults (mean age: 80.51 ± 7.65) with different stages of dementia. Family was the primary provider of care in 65%. Overall, COVID-19 confinement increased stress caregiver independently of the dementia stage, but those caring for severe cases had more stress compared to milder forms of the disease. Other findings were that half of the subjects with dementia experienced increased anxiety and that most family members discontinued all sort of cognitive and physical therapies. Family members' main concerns were for severe dementia cases, fear of absence of the paid caregiver during the epidemic, and for mild cases fear of spreading the disease while assisting patients with instrumental activities. A partnership between departments of public health, care workers and families must be planned to guarantee continuity of care during these unique COVID-19 times.

Indexed as

Cost of IllnessCOVID-19Stress, PsychologicalAdultAgedAged, 80 and overAnxietyArgentinaCaregiver BurdenCaregiversDementiaFamilyFemaleHumansMaleMiddle AgedAlzheimer’s disease (AD)dementiaoutpatient

Identifiers

PMID32729446
PMCPMC7453351

What OpenQuestion holds

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Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.