ArticleJournal of the American Medical Informatics Association : JAMIA2021
Ethics and informatics in the age of COVID-19: challenges and recommendations for public health organization and public policy.
Article in Journal of the American Medical Informatics Association : JAMIA, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 29 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
29 citing papers in PubMed.
- What Do We Mean by Sharing of Patient Data? DaSH: A Data Sharing Hierarchy of Privacy and Ethical Challenges.Applied clinical informatics · 2024Article
- Ethical Considerations in Infodemic Management: Systematic Scoping Review.JMIR infodemiology · 2024Article
- News Coverage of the COVID-19 Pandemic on Social Media and the Public's Negative Emotions: Computational Study.Journal of medical Internet research · 2024Article
- Now Is the Time to Strengthen Government-Academic Data Infrastructures to Jump-Start Future Public Health Crisis Response.JMIR public health and surveillance · 2024Article
- Mobilizing health equity through Computable Biomedical Knowledge (CBK): a call to action to the library, information sciences, and health informatics communities.Journal of the Medical Library Association : JMLA · 2024Article
- Changes to Public Health Surveillance Methods Due to the COVID-19 Pandemic: Scoping Review.JMIR public health and surveillance · 2024Article
- Sociosanitary Legal and Economic Aspects in Nursing Homes for the Elderly in Spain.International journal of environmental research and public health · 2023Article
- Association of Participation in the Maryland Primary Care Program With COVID-19 Outcomes Among Medicare Beneficiaries.JAMA network open · 2023Article
- A Privacy Nihilist Perspective on Clinical Data Sharing: Open Clinical Data Sharing is Dead, Long Live the Walled Garden.Journal of the Society for Clinical Data Management · 2023Article
- Examining public views on decentralised health data sharing.PloS one · 2023Article
- Demonstrating an approach for evaluating synthetic geospatial and temporal epidemiologic data utility: results from analyzing >1.8 million SARS-CoV-2 tests in the United States National COVID Cohort Collaborative (N3C).Journal of the American Medical Informatics Association : JAMIA · 2022Article
- Impact of accreditation on health care services performance in Kiryandongo district, Uganda: a longitudinal study.BMC health services research · 2022Article
- Unraveling COVID-19: A Large-Scale Characterization of 4.5 Million COVID-19 Cases Using CHARYBDIS.Clinical epidemiology · 2022Article
- Tracing app technology: an ethical review in the COVID-19 era and directions for post-COVID-19.Ethics and information technology · 2022Review
- Towards a Newborn Screening Common Data Model: The Utah Newborn Screening Data Model.International journal of neonatal screening · 2021Article
- The Clinical Information Systems Response to the COVID-19 Pandemic.Yearbook of medical informatics · 2021Review
- Primary Care Informatics Response to Covid-19 Pandemic: Adaptation, Progress, and Lessons from Four Countries with High ICT Development.Yearbook of medical informatics · 2021Article
- Managing Pandemics with Health Informatics: Successes and Challenges.Yearbook of medical informatics · 2021Article
- Pandemics: Historically Slow "Learning Curve" Leading to Biomedical Informatics and Vaccine Breakthroughs.Yearbook of medical informatics · 2021Article
- Demonstrating an approach for evaluating synthetic geospatial and temporal epidemiologic data utility: Results from analyzing >1.8 million SARS-CoV-2 tests in the United States National COVID Cohort Collaborative (N3C).medRxiv : the preprint server for health sciences · 2021Article
Corrections and comments
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Authors and funding
14 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
The COVID-19 pandemic response in the United States has exposed significant gaps in information systems and processes that prevent timely clinical and public health decision-making. Specifically, the use of informatics to mitigate the spread of SARS-CoV-2, support COVID-19 care delivery, and accelerate knowledge discovery bring to the forefront issues of privacy, surveillance, limits of state powers, and interoperability between public health and clinical information systems. Using a consensus-building process, we critically analyze informatics-related ethical issues in light of the pandemic across 3 themes: (1) public health reporting and data sharing, (2) contact tracing and tracking, and (3) clinical scoring tools for critical care. We provide context and rationale for ethical considerations and recommendations that are actionable during the pandemic and conclude with recommendations calling for longer-term, broader change (beyond the pandemic) for public health organization and policy reform.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.