Evidence map›Paper›PMID 32718923›Full record

ArticleBMJ open2020

"Caring About Me": a pilot framework to understand patient-centered care experience in integrated care - a qualitative study.

Alaa Youssef, David Wiljer, Maria Mylopoulos, Robert Maunder, Sanjeev Sockalingam

Open access · goldAbstract read
In one paragraph

Article in BMJ open, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 22 papers, 2 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
22citing papers in PubMed, 2 pooled it
2.6field-weighted citation impact, top 9% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

22 citing papers in PubMed, 2 syntheses or guidelines pooled it, 49 citations in OpenAlex.

  1. Pooled it
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  8. Strengthening the Delivery of Physical Healthcare for Adults Living With Serious Mental Illness - A Qualitative Description of Patient and Family Member Perspectives.Health expectations : an international journal of public participation in health care and health policy · 2025
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  14. Finding a path in a methodological jungle: a qualitative research of resilience.International journal of qualitative studies on health and well-being · 2023
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  16. "It's Complicated": Using Education to Bridge Essential Care Between Hospital and Community for Complex Patients with HIV.Academic psychiatry : the journal of the American Association of Directors of Psychiatric Residency Training and the Association for Academic Psychiatry · 2023
    Article
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  18. Engagement of patient and family advisors in health system redesign in Canada.Journal of health services research & policy · 2023
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors at 3 institutions in 2 countries.

Alaa YoussefInstitute of Medical Science (IMS), University of Toronto, Toronto, Ontario, Canada.ORCID 0000-0001-6505-8236
David WiljerPsychiatry, Faculty of Medicine, University of Toronto, Toronto, Ontario, Canada.
Maria MylopoulosWilson Centre, Undergraduate Medical Professions Education and Department of Paediatrics, University of Toronto, Toronto, Ontario, Canada.
Robert MaunderPsychiatry, Faculty of Medicine, University of Toronto, Toronto, Ontario, Canada.
Sanjeev SockalingamPsychiatry, Faculty of Medicine, University of Toronto, Toronto, Ontario, Canada sanjeev.sockalingam@camh.ca.
University of Toronto · CACentre for Addiction and Mental Health · CAUniversity Health Network · CA

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

objectiveThe aim of this study is to examine patients' experiences in integrated care (IC) settings.

designQualitative study using semistructured interviews. SETTINGS: Two IC sites in Toronto, Canada: (1) a community-based primary healthcare centre, supporting patients with hepatitis C and comorbid mental health and substance use issues; and (2) an integrated bariatric surgery programme, an academic tertiary care centre.

participantsThe study included patients (n=12) with co-occurring mental and physical health conditions. Seven participants (58%) were female and five (42%) were male.

methodsTwelve indepth semistructured interviews were conducted with a purposeful sample of patients (n=12) with comorbid mental and physical conditions at two IC sites in Toronto between 2017 and 2018. Data were collected and analysed using grounded theory approach.

resultsFour themes emerged in our analysis reflecting patients' perspectives on patient-centred care experience in IC: (1) caring about me; (2) collaborating with me; (3) helping me understand and self-manage my care; and (4) personalising care to address my needs. Patients' experiences of care were primarily shaped by quality of relational interactions with IC team members. Positive interactions with IC team members led to enhanced patient access to care and fostered personalising care plans to address unique needs.

conclusionThis study adds to the literature on creating patient-centredness in IC settings by highlighting the importance of recognising patients' unique needs and the context of care for the specific patient population.

Indexed as

Delivery of Health Care, IntegratedPatient-Centered CarePatient SatisfactionAcademic Medical CentersBariatric SurgeryCommunity Health CentersComorbidityFemaleHepatitis CHumansMaleMental DisordersOntarioPilot ProjectsQualitative ResearchSelf-Managementgeneral medicine (see internal medicine)mental healthprimary carepsychiatryqualitative research

Identifiers

PMID32718923
PMCPMC7389773
OpenAlexW3044355885

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.