ArticleQualitative health research2020
Former NICU Families Describe Gaps in Family-Centered Care.
Article in Qualitative health research, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 46 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
46 citing papers in PubMed, 1 synthesis or guideline pooled it, 93 citations in OpenAlex.
- Positive breastfeeding experiences and facilitators in mothers of preterm and low birthweight infants: a meta-ethnographic review.International breastfeeding journal · 2021Pooled it
- Summary of best evidence on parental involvement in neonatal intensive care units: integrating family-centered and family-integrated care models.Global health action · 2026Review
- Evaluation of a Telesimulation Program to Support Psychosocial Communication Training for Neonatology Fellows.Behavioral sciences (Basel, Switzerland) · 2026Article
- Diversity, equity, and inclusion considerations for anti-racist, equity-focused NICU family mental health.Journal of perinatology : official journal of the California Perinatal Association · 2026Review
- The future of follow-up: technology-enabled medical and developmental follow-up care for NICU graduates.Journal of perinatology : official journal of the California Perinatal Association · 2026Review
- Family first: integrating principles of family-centered care to improve the tuberculosis care cascade.BMC global and public health · 2026Review
- Staff perspectives on racial inequities in the neonatal intensive care unit: the REJOICE study.Journal of perinatology : official journal of the California Perinatal Association · 2026Article
- Integrating family integrated care into neonatal practice: nursing experiences and education program development-A qualitative study.Frontiers in pediatrics · 2026Article
- Perceptions of Parental Needs in General Pediatric Inpatient Units: A Comparative Study Between Nurses and Parents in Saudi Arabia.Children (Basel, Switzerland) · 2025Article
- Psychometric validation and cultural adaptation of the family-centered care Questionnaire-Revised for use among nurses in Saudi Arabia.BMC nursing · 2025Article
- Developmental-Centered Care in Preterm Newborns: Scoping Review.Children (Basel, Switzerland) · 2025Review
- Voices of parents of children with major congenital anomalies admitted to the NICU: initial diagnosis, hospitalization, and discharge home.Journal of perinatology : official journal of the California Perinatal Association · 2025Article
- Experiences of communication in the neonatal intensive care unit for mothers with a preferred language other than English.Journal of perinatology : official journal of the California Perinatal Association · 2025Article
- Parent and staff focus groups to address NICU racial inequities: "There's radical optimism in that we're in a different time and we're not doing it alone".Journal of perinatology : official journal of the California Perinatal Association · 2025Article
- Increasing in-person medical interpreter utilization in the NICU through a bundle of interventions.Journal of perinatology : official journal of the California Perinatal Association · 2025Article
- "AJP reports · 2025Article
- Mobile-enhanced Family Integrated Care for preterm infants: A qualitative study of parents' views.PEC innovation · 2024Article
- Family-centered care: addressing challenges and implementing countermeasures in response to novel coronavirus pneumonia prevention and control-a narrative review.Journal of thoracic disease · 2024Review
- Insights into the relationship between professional values and caring behavior among nurses in neonatal intensive care units.BMC nursing · 2024Article
- Families as partners in neonatal neuro-critical care programs.Pediatric research · 2024Review
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
9 authors at 4 institutions in 1 country.
Funding
Abstract
Care and outcomes of infants admitted to neonatal intensive care vary and differences in family-centered care may contribute. The objective of this study was to understand families' experiences of neonatal care within a framework of family-centered care. We conducted focus groups and interviews with 18 family members whose infants were cared for in California neonatal intensive care units (NICUs) using a grounded theory approach and centering the accounts of families of color and/or of low socioeconomic status. Families identified the following challenges that indicated a gap in mutual trust and power sharing: conflict with or lack of knowledge about social work; staff judgment of, or unwillingness to address barriers to family presence at bedside; need for nurse continuity and meaningful relationship with nurses and inconsistent access to translation services. These unmet needs for partnership in care or support were particularly experienced by parents of color or of low socioeconomic status.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.