ArticleJournal of cancer survivorship : research and practice2021
Living with leg lymphedema: developing a novel model of quality lymphedema care for cancer survivors.
Article in Journal of cancer survivorship : research and practice, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 8 papers.
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Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
8 citing papers in PubMed, 14 citations in OpenAlex.
- A pragmatic evaluation of community-based lymphoedema services for individuals at risk of, or living with, cancer-related lymphoedema.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2026Trial
- Impact of Lymphedema on Women's Lives After Gynaecological Cancer: An Integrative Review.Scandinavian journal of caring sciences · 2026Review
- Article
- Home self-management experience of gynaecological tumour patients with lower limb lymphoedema: a qualitative study.Primary health care research & development · 2025Article
- A Prospective Study of the Impact of Lymphatic Venous Anastomosis as a Treatment for Lymphedema.Plastic and reconstructive surgery. Global open · 2025Article
- The lymphedema patient experience within the healthcare system: a cross-sectional epidemiologic assessment.Scientific reports · 2024Article
- The Role of Inflammation in Lymphedema: A Narrative Review of Pathogenesis and Opportunities for Therapeutic Intervention.International journal of molecular sciences · 2024Review
- Depressive symptoms and their severity in a sample with lymphedema: a case-control investigation.Frontiers in psychiatry · 2023Article
Corrections and comments
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Authors and funding
5 authors at 1 institution in 1 country.
Funding
Abstract
purposeLower-extremity lymphedema (LEL) is a lifelong consequence of cancer therapy and can lead to serious physical and psychosocial complications for many cancer survivors. However, clinical knowledge and treatment of LEL remain minimal. The purpose of this study was to integrate perspectives of lymphedema patients and healthcare providers (HCPs) on LEL to develop a novel model for quality lymphedema care.
methodsA mixed-methods approach was implemented. Standardized questionnaires and semi-structured interviews were used to assess psychosocial well-being and experiences of LEL patients. Interviews were also used to evaluate the clinical experiences of HCPs working within tumour groups associated with cancer-related LEL. Thematic analysis was used to analyse qualitative data.
resultsTwenty-two patients and eleven HCPs participated in this study. Patient QOL, generalized anxiety and depressive symptom scores revealed a complex interplay between psychosocial well-being and supportive LEL care after cancer. Three themes emerged from interviews with patients (n = 19) and HCPs (n = 11): level of lymphedema knowledge, effectiveness of rehabilitation oncology services and barriers to care. IMPLICATIONS FOR CANCER SURVIVORS: We developed a novel model for quality lymphedema care that emphasizes the importance of continued physical and psychosocial support for LEL patients, while illustrating the importance of HCPs in facilitating a smooth transition for patients to LEL care after cancer treatment.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.