Evidence map›Paper›PMID 32712672›Full record

ArticleNephrology, dialysis, transplantation : official publication of the European Dialysis and Transplant Association - European Renal Association2020

Meaning of empowerment in peritoneal dialysis: focus groups with patients and caregivers.

Amanda Baumgart, Karine E Manera, David W Johnson, Jonathan C Craig, Jenny I Shen, Lorena Ruiz, Angela Yee-Moon Wang, Terence Yip, Samuel K S Fung, Matthew Tong and 16 more

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PubMed Full text at PMC Publisher
In one paragraph

Article in Nephrology, dialysis, transplantation : official publication of the European Dialysis and Transplant Association - European Renal Association, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 25 papers.

0numbers the graph read from it
0cells of the map it votes in
25citing papers in PubMed
7.4field-weighted citation impact, top 2% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

25 citing papers in PubMed, 65 citations in OpenAlex.

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  9. Advances in Human-Centered Care to Address Contemporary Unmet Needs in Chronic Dialysis.International journal of nephrology and renovascular disease · 2024
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

26 authors at 16 institutions in 9 countries.

Amanda BaumgartSydney School of Public Health, The University of Sydney, Sydney, New South Wales, Australia.
Karine E ManeraSydney School of Public Health, The University of Sydney, Sydney, New South Wales, Australia.
David W JohnsonDepartment of Nephrology, Princess Alexandra Hospital, Brisbane, Australia.
Jonathan C CraigSydney School of Public Health, The University of Sydney, Sydney, New South Wales, Australia.
Jenny I ShenDivision of Nephrology and Hypertension, Los Angeles Biomedical Research Institute at Harbor, University of California, Los Angeles Medical Center, Torrance, CA, USA.
Lorena RuizDivision of Nephrology and Hypertension, Los Angeles Biomedical Research Institute at Harbor, University of California, Los Angeles Medical Center, Torrance, CA, USA.
Angela Yee-Moon WangDepartment of Medicine, Queen Mary Hospital, The University of Hong Kong, Hong Kong, China.
Terence YipDepartment of Medicine, Tung Wah Hospital, Hong Kong, China.
Samuel K S FungDivision of Nephrology, Department of Medicine and Geriatrics, Jockey Club Nephrology and Urology Centre, Princess Margaret Hospital, Kowloon, Hong Kong, China.
Matthew TongDepartment of Medicine and Geriatrics, Pok Oi Hospital, Yuen Long, Hong Kong, China.
Achilles LeeDepartment of Medicine and Geriatrics, Tuen Mun Hospital, Hong Kong, China.
Yeoungjee ChoDepartment of Nephrology, Princess Alexandra Hospital, Brisbane, Australia.
Andrea K ViecelliDepartment of Nephrology, Princess Alexandra Hospital, Brisbane, Australia.
Benedicte SautenetCentre for Kidney Research, The Children's Hospital at Westmead, Sydney, New South Wales, Australia.
Armando Teixeira-PintoSydney School of Public Health, The University of Sydney, Sydney, New South Wales, Australia.
Edwina A BrownImperial College Renal and Transplant Centre, Hammersmith Hospital, London, UK.
Gillian BrunierSunnybrook Research Institute, Sunnybrook Health Sciences Centre, Toronto, Ontario, Canada.
Jie DongRenal Division, Department of Medicine, Peking University First Hospital, Beijing, China.
Nicole Scholes-RobertsonSydney School of Public Health, The University of Sydney, Sydney, New South Wales, Australia.
Tony DunningSouth Bank Technical and Further Education, Brisbane, Australia.
Rajnish MehrotraKidney Research Institute, Division of Nephrology, Department of Medicine, University of Washington, Seattle, WA, USA.
Saraladevi NaickerDepartment of Internal Medicine, School of Clinical Medicine, Faculty of Health Sciences, University of the Witwatersrand, Johannesburg, South Africa.
Roberto Pecoits-FilhoSchool of Medicine, Pontifícia Universidade Católica do Paraná, Curitiba, Paraná, Brazil.
Jeffrey PerlDivision of Nephrology, Department of Medicine, St Michael's Hospital Unity Health, University of Toronto, Toronto, Ontario, Canada.
Martin WilkieSheffield Kidney Institute, Sheffield Teaching Hospitals National Health Service Foundation Trust, Sheffield, UK.
Allison TongSydney School of Public Health, The University of Sydney, Sydney, New South Wales, Australia.
The University of Sydney · AUThe University of Queensland · AUUniversity of California, Los Angeles · USHammersmith Hospital · GBHong Kong Jockey Club · CNNational Health Service · GBPeking University · CNPontifícia Universidade Católica do Paraná · BRQueen Mary Hospital · CNSt. Michael's Hospital · CASunnybrook Health Science Centre · CATuen Mun Hospital · CNTung Wah Hospital · CNUniversité de Tours · FRUniversity of the Witwatersrand · ZAUniversity of Washington · US

Funding

Trajectories of Adherence to Cardiovascular Medications in Patients on DialysisK23DK103972 · NIDDK · LUNDQUIST INSTITUTE FOR BIOMEDICAL INNOVATION AT HARBOR-UCLA MEDICAL CENTER · PI SHEN, JENNY I · 2015 to 2019
$934k
Medical Research Council MC_PC_16100NIDDK NIH HHS K23 DK103972
6 · The paper itself

Abstract

backgroundWhile peritoneal dialysis (PD) can offer patients more independence and flexibility compared with in-center hemodialysis, managing the ongoing and technically demanding regimen can impose a burden on patients and caregivers. Patient empowerment can strengthen capacity for self-management and improve treatment outcomes. We aimed to describe patients' and caregivers' perspectives on the meaning and role of patient empowerment in PD.

methodsAdult patients receiving PD (n = 81) and their caregivers (n = 45), purposively sampled from nine dialysis units in Australia, Hong Kong and the USA, participated in 14 focus groups. Transcripts were thematically analyzed.

resultsWe identified six themes: lacking clarity for self-management (limited understanding of rationale behind necessary restrictions, muddled by conflicting information); PD regimen restricting flexibility and freedom (burden in budgeting time, confined to be close to home); strength with supportive relationships (gaining reassurance with practical assistance, comforted by considerate health professionals, supported by family and friends); defying constraints (reclaiming the day, undeterred by treatment, refusing to be defined by illness); regaining lost vitality (enabling physical functioning, restoring energy for life participation); and personal growth through adjustment (building resilience and enabling positive outlook, accepting the dialysis regimen).

conclusionsUnderstanding the rationale behind lifestyle restrictions, practical assistance and family support in managing PD promoted patient empowerment, whereas being constrained in time and capacity for life participation outside the home undermined it. Education, counseling and strategies to minimize the disruption and burden of PD may enhance satisfaction and outcomes in patients requiring PD.

Indexed as

Focus GroupsLife StyleAdolescentAdultAgedAged, 80 and overCaregiversFemaleHumansMaleMiddle AgedPatient ParticipationPeritoneal DialysisSelf-ManagementTreatment OutcomeYoung Adultchronic kidney diseasepatient empowermentperitoneal dialysisquality of life

Identifiers

PMID32712672
PMCPMC7824999
OpenAlexW3044475829

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.