ArticleBMC nephrology2020
Thematic analysis of the medical records of patients evaluated for kidney transplant who did not receive a kidney.
Article in BMC nephrology, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 13 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
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Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
13 citing papers in PubMed, 19 citations in OpenAlex.
- Should Adherence to Medical Recommendations Be a Requirement for Kidney Transplant Candidacy?The American journal of bioethics : AJOB · 2026Article
- Using Natural Language Processing to Characterize Early Steps in the Kidney Transplant Evaluation Process Documented in the National Veterans Affairs Electronic Health Record.Clinical transplantation · 2026Article
- Examining Transparency in Kidney Transplant Recipient Selection Criteria: Nationwide Cross-Sectional Study.JMIR AI · 2025Article
- Thematic Analysis of Clinician Documentation Surrounding Treatment Discussions and Decision-Making in Patients With Desmoid Tumors.Cancer medicine · 2025Article
- Disentangling Dialysis Facility and Transplant Center Factors on Evaluation Start Following Referral for Kidney Transplantation: A Regional Study in the United States.Kidney medicine · 2025Article
- Experience of Older Adults and Their Family Members in the Kidney Transplant Evaluation.JAMA internal medicine · 2025Article
- Perceptions of Palliative Care Among Patients With Kidney Allograft Dysfunction: A Qualitative Study.Kidney medicine · 2024Article
- Article
- A Single-Center Retrospective Evaluation of Decision-Making and Factors Motivating Hand Transplant Candidates.Progress in transplantation (Aliso Viejo, Calif.) · 2023Article
- Enacting person-centred care: a multi-perspective study of practices in clinical encounters for people living with chronic kidney disease.BMC nephrology · 2023Article
- [Long-term physical and psychological consequences of chronic kidney disease].Bundesgesundheitsblatt, Gesundheitsforschung, Gesundheitsschutz · 2022Review
- Non-medical barriers in access to early steps of kidney transplantation in the United States - A scoping review.Transplantation reviews (Orlando, Fla.) · 2021Article
- Identifying Needs and Barriers to Engage Family Members in Transplant Candidate Care.Progress in transplantation (Aliso Viejo, Calif.) · 2021Article
Corrections and comments
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Authors and funding
4 authors at 4 institutions in 2 countries.
Funding
Abstract
backgroundA potential pitfall of policies intended to promote referral for kidney transplant is that greater numbers of patients may be evaluated for transplant without experiencing the intended benefit of receiving a kidney. Little is known about the potential implications of this experience for patients.
methodsWe performed a thematic analysis of clinician documentation in the electronic medical records of all adults at a single medical center with advanced kidney disease who were referred to the local transplant coordinator for evaluation between 2008 and 2018 but did not receive a kidney.
results148 of 209 patients referred to the local kidney transplant coordinator at our center (71%) had not received a kidney by the end of follow-up. Three dominant themes emerged from qualitative analysis of documentation in the medical records of these patients: 1) Forward momentum: patients found themselves engaged in an iterative process of testing and treatment that tended to move forward unless an absolute contraindication to transplant was identified or patients disengaged; 2) Potential for transplant shapes other medical decisions: engagement in the transplant evaluation process could impact many other aspects of patients' care; and 3) Personal responsibility and psychological burden for patients and families: clinician documentation suggested that patients felt personally responsible for the course of their evaluation and that the process could take an emotional toll on them and their family members.
conclusionsEngagement in the kidney transplant evaluation process can be a significant undertaking for patients and families and may impact many other aspects of their care. Policies to promote referral for kidney transplant should be coupled with efforts to strengthen shared decision-making to ensure that the decision to undergo transplant evaluation is framed as an explicit choice with benefits, risks, and alternatives and patients have an opportunity to shape their involvement in this process.
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Registered trials
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