ArticleCancer medicine2020
Disparities in cancer-related healthcare among people with intellectual disabilities: A population-based cohort study with health insurance claims data.
Article in Cancer medicine, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 22 papers, 4 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
22 citing papers in PubMed, 4 syntheses or guidelines pooled it, 47 citations in OpenAlex.
- Cancer prevention and screening for people with intellectual disabilities in Europe: a systematic review and recommendations for policy and practice.Frontiers in public health · 2026Pooled it
- Cancer Prevention in Adults with Intellectual Disabilities: A Systematic Literature Review of Caregiver Perspectives in Institutional and Home Care Settings.International journal of environmental research and public health · 2024Pooled it
- Cancer risks related to intellectual disabilities: A systematic review.Cancer medicine · 2024Pooled it
- Do people with disabilities experience disparities in cancer care? A systematic review.PloS one · 2023Pooled it
- Investigating Cancer literacy and help-seeking barriers among individuals with intellectual disabilities in Hungary.Preventive medicine reports · 2026Article
- The importance of cancer prevention policies to inform and guide preventative and screening measures for people with intellectual disabilities: The COST project "Cancer- Understanding Prevention in Intellectual Disabilities".Journal of intellectual disabilities : JOID · 2026Article
- Navigating cancer treatment in people with intellectual disability: a qualitative study of professionals' and family members' perspectives.BMC cancer · 2026Article
- Cancer prevalence and care disparities among individuals with intellectual disabilities: a cross-sectional pan-cancer analysis.ESMO real world data and digital oncology · 2025Article
- Intellectual and developmental disabilities (IDD) and cancer symptom reporting: a matched retrospective cohort study.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2025Article
- "The Forgotten Minority": Perpetuation of Ableism in Medical Education.Journal of general internal medicine · 2025Article
- Low vision aids provision in an urban setting in Germany between 2014 and 2017: a regional population based study with healthcare claims data.Graefe's archive for clinical and experimental ophthalmology = Albrecht von Graefes Archiv fur klinische und experimentelle Ophthalmologie · 2024Article
- Article
- [Cancer in people with an intellectual disability in Germany: prevalence, genetics, and care situation].Bundesgesundheitsblatt, Gesundheitsforschung, Gesundheitsschutz · 2024Review
- People with intellectual disabilities' experiences of primary care health checks, screenings and GP consultations: a systematic review and meta-ethnography.International journal of developmental disabilities · 2024Review
- Identifying the deficits in cancer care for people with intellectual disabilities.BMJ oncology · 2024Article
- Malignancies in Prader-Willi Syndrome: Results From a Large International Cohort and Literature Review.The Journal of clinical endocrinology and metabolism · 2023Review
- Article
- Trends in low vision service utilisation: A retrospective study based on general population healthcare claims.Ophthalmic & physiological optics : the journal of the British College of Ophthalmic Opticians (Optometrists) · 2022Article
- Cancer in deceased adults with intellectual disabilities: English population-based study using linked data from three sources.BMJ open · 2022Article
- Cancer-related mortality among people with intellectual disabilities: A nationwide population-based cohort study.Cancer · 2022Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
9 authors at 3 institutions in 2 countries.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundConcerns have been raised about the accessibility and quality of cancer-related care for people with intellectual disabilities (ID). However, there is limited insight into cancer incidence and the utilization of cancer care at the ID population level to inform targeted cancer control strategies. Therefore, we aimed to examine differences in the utilization of cancer-related care between people with and without ID, identified through diagnostic codes on health insurance claims.
methodsIn a population-based cohort study, Dutch individuals of all ages who received residential care through the Chronic Care Act due to an ID (n = 65 183) and an age and sex-matched sample of persons without ID (1:2 ratio), who were cancer-free at enrollment in 2013 were followed through 2015. Incidence rates (IRs) of newly started cancer care and IR ratios (IRRs) with 95% CIs were used to compare groups. Separate analyses were performed per cancer type.
resultsIndividuals with ID received less cancer-related care than individuals without (IRR = 0.64, 95% CI 0.62-0.66). Differences increased with age and were larger for females than for males. Utilization of care for cancers within the national screening program (female breast, cervical, and colon cancer) was lower for people with ID compared to people without ID.
conclusionCancer may be underdiagnosed and/or undertreated in people with ID, or cancer is truly less prevalent in this population. In particular, the differences detected between males and females with ID, and the potential underutilization of national screening programs, require urgent follow-up investigations.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.