Evidence map›Paper›PMID 32704374›Full record

ArticleBorderline personality disorder and emotion dysregulation2020

A study comparing the experiences of family and friends of young people with borderline personality disorder features with family and friends of young people with other serious illnesses and general population adults.

Mirra R Seigerman, Jennifer K Betts, Carol Hulbert, Ben McKechnie, Victoria K Rayner, Martina Jovev, Sue M Cotton, Louise McCutcheon, Catharine McNab, Emma Burke and 1 more

Registry-linked trialOpen access · goldAbstract read
In one paragraph

Article in Borderline personality disorder and emotion dysregulation, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT06563466 (PEGASUS - Improving Treatment for Patients With Emotionally Unstable Personality Disorder), which is not on this map. Cited by 16 papers.

0numbers the graph read from it
0cells of the map it votes in
16citing papers in PubMed
1.5field-weighted citation impact, top 11% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT06563466 narecruitingnot on this mapstarted 2024, after this paper: background citation

PEGASUS - Improving Treatment for Patients With Emotionally Unstable Personality Disorder

TypeinterventionalSponsorUniversity Hospital Bispebjerg and FrederiksbergRan2024 to 2029Enrolled100ConditionsBorderline Personality Disorder, RelativesArmsThe experimental intervention PEGASUS, Treatment as usual
3 · Its place in the literature

Who cites it

16 citing papers in PubMed, 30 citations in OpenAlex.

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  11. Psychoeducational groups for close relatives of patients with borderline personality disorder.European archives of psychiatry and clinical neuroscience · 2023
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  14. Early Intervention for Personality Disorder.Focus (American Psychiatric Publishing) · 2022
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

11 authors at 2 institutions in 1 country.

Mirra R SeigermanMelbourne School of Psychological Sciences, The University of Melbourne, Melbourne, Australia.
Jennifer K BettsOrygen, Melbourne, Australia.
Carol HulbertMelbourne School of Psychological Sciences, The University of Melbourne, Melbourne, Australia.
Ben McKechnieOrygen, Melbourne, Australia.
Victoria K RaynerOrygen, Melbourne, Australia.
Martina JovevOrygen, Melbourne, Australia.
Sue M CottonOrygen, Melbourne, Australia.
Louise McCutcheonOrygen, Melbourne, Australia.
Catharine McNabOrygen, Melbourne, Australia.
Emma BurkeOrygen, Melbourne, Australia.
Andrew M ChanenOrygen, Melbourne, Australia.ORCID 0000-0003-4468-622X
The University of Melbourne · AUOrygen · AU

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundFamily and friends ('carers') of adults with borderline personality disorder (BPD) and carers of young people with other serious illnesses experience significant adversity but research on the experiences of caring for a young person with BPD features is sparse. This study aimed to: (i) describe the experiences of carers of young people with BPD features; (ii) compare them with published data assessing carers of young people with other serious illnesses and with adults from the general population.

methodsEighty-two carers (M age = 44.74, SD = 12.86) of 54 outpatient young people (M age = 18.76, SD = 3.02) who met 3 to 9 DSM-IV BPD criteria completed self-report measures on distress, experiences of caregiving, coping, and expressed emotion. Independent-samples t-tests were employed to compare scores with those reported by convenience comparison groups of general population adults or carers of young people with eating disorders, cancer, or psychosis.

resultsCarers of young people with BPD features reported significantly elevated levels of distress, negative caregiving experiences, and expressed emotion, as well as maladaptive coping strategies, compared with general population adults or carers of young people with other serious illnesses.

conclusionsCarers of young people with BPD features experience elevated levels of adversity compared with their peers in the general adult population. This adversity is similar to, or greater than, that reported by carers of young people with other severe illnesses. Research is needed to clarify factors underlying adverse caregiving experiences and to develop and evaluate interventions to support carers of young people with BPD features.

trial registrationProspectively registered with the Australian New Zealand Clinical Trial Registry ACTRN12616000304437 on 08 March 2016, https://anzctr.org.au/Trial/Registration/TrialReview.aspx?id=369867.

Indexed as

AdolescentBorderline personality disorderCarersCopingExperiences of caregivingExpressed emotionPsychological distressYouth

Identifiers

PMID32704374
PMCPMC7374854
OpenAlexW3044972766

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.