ArticleJournal of perinatology : official journal of the California Perinatal Association2021
Diverse perspectives on death, disability, and quality of life: an exploratory study of racial differences in periviable decision-making.
Article in Journal of perinatology : official journal of the California Perinatal Association, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 8 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
8 citing papers in PubMed.
- Bias and Disparities in Neonatal End-of-Life Care.NeoReviews · 2025Article
- Reducing moral distress through interdisciplinary collaboration: the impact of a weekly palliative care and neonatology conference.BMC palliative care · 2025Article
- Racism in Pediatric Serious Illness and Palliative Care: A Scoping Review of Qualitative Research.Journal of pain and symptom management · 2025Article
- Feasibility and acceptability of chaplain decision coaching on Periviable resuscitation decision quality: A pilot study.PEC innovation · 2024Article
- Maternal Migration Background and Mortality Among Infants Born Extremely Preterm.JAMA network open · 2023Article
- Article
- Decision making at extreme prematurity: Innovation in clinician education.Seminars in perinatology · 2022Article
- Disparities in perinatal health: what can we do?Journal of perinatology : official journal of the California Perinatal Association · 2021Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
6 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
objectiveTo qualitatively explore perceptions of pain/suffering, disability, and coping by race among pregnant women facing the threat of a periviable delivery (22 0/7-24 6/7 weeks). STUDY
designInterviews were conducted in-hospital prior to delivery. Transcripts were coded verbatim and responses were stratified by race (white vs non-white). Conventional content analysis was conducted using NVivo 12.
resultsWe recruited 30 women (50% white, 50% non-white). Most women expressed love and acceptance of their babies and described pain as a "means to an end." Non-white women focused almost exclusively on immediate survival and perseverance, while white women expressed concerns about quality of life beyond the NICU. The majority of non-white women were unable to recall any discussions with their doctors about their baby's comfort, pain, or suffering.
conclusionsThese findings may suggest that culturally tailored approaches to counseling and decision-support may be beneficial for patients from marginalized or minoritized groups.
Indexed as
Identifiers
32704076What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.