SynthesisMedicine2020
Healthcare access for autistic adults: A systematic review.
Synthesis in Medicine, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 30 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
30 citing papers in PubMed, 1 synthesis or guideline pooled it.
- A systematic review of person-centred adjustments to facilitate magnetic resonance imaging for autistic patients without the use of sedation or anaesthesia.Autism : the international journal of research and practice · 2022Pooled it
- Psychoeducational group intervention for intellectually able adults with autism and their close relations (Prisma) - an open feasibility study.BMC psychiatry · 2022Trial
- Review
- The Meaning of Autism Friendly in Hospital Settings: A Scoping Review of the Autism Community's Perspectives.Journal of autism and developmental disorders · 2026Article
- Developmental Trajectories in Young Autistic Children Receiving Parent-Mediated Intervention Through In-Person and Telehealth Service Delivery Models: A Naturalistic, Nonrandomized Clinical Study.Journal of autism and developmental disorders · 2026Article
- MRI for patients with autism: evaluating radiologic technologists' awareness and practice in Saudi healthcare settings.BMC medical education · 2026Article
- A scoping review to inform an auditing framework evaluating healthcare environments for inclusion of people with intellectual disability and/or autism.Journal of intellectual disabilities : JOID · 2026Article
- The Power of ECHO Autism: Improving Confidence and Holistic Care for Autistic Adults.Journal of intellectual disability research : JIDR · 2026Article
- Aligning Biomedical Research With Neurodiversity to Support the Metabolic Health of Autistic Individuals.Obesity science & practice · 2026Article
- Understanding eye care access for autistic adults and families: A convergent mixed-methods study.Autism : the international journal of research and practice · 2026Article
- Relevant Criteria for Improving Quality of Schizophrenia Spectrum Disorders Treatment: A Delphi Study.Healthcare (Basel, Switzerland) · 2025Article
- Article
- Consensus on high-priority outcomes to be used in the evaluation of services for autistic adults: Results from a "CBPR-Nested Delphi Process".Autism : the international journal of research and practice · 2025Article
- Autistic patients.CMAJ : Canadian Medical Association journal = journal de l'Association medicale canadienne · 2025Article
- Barriers and facilitators to primary healthcare encounters as reported by autistic adults: a qualitative study.Frontiers in medicine · 2025Article
- How healthcare systems are experienced by autistic adults in the United Kingdom: A meta-ethnography.Autism : the international journal of research and practice · 2024Review
- Multigenerational association between smoking and autism spectrum disorder: findings from a nationwide prospective cohort study.American journal of epidemiology · 2024Article
- Sentiment analysis of post-COVID-19 health information needs of autism spectrum disorder community: insights from social media discussions.Frontiers in psychiatry · 2024Article
- "I've Spent My Whole Life Striving to Be Normal": Internalized Stigma and Perceived Impact of Diagnosis in Autistic Adults.Autism in adulthood · 2023Article
- Increased rates of chronic physical health conditions across all organ systems in autistic adolescents and adults.Molecular autism · 2023Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
4 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundPeople with autism spectrum disorder (ASD) have an increased susceptibility for many chronic health conditions compared with their peers. An increasing number of adolescents are transitioning from pediatric to adult healthcare services. Thus, being able to access appropriate healthcare services that can not only address specific needs of the person but enable them to better manage healthcare conditions and decrease the development of preventable disease is necessary. A systematic review was conducted to identify barriers and enablers of healthcare access for autistic adults.
methodsThe studies included in the review were quantitative and qualitative and were published between 2003 and 2019. The participants for the review are considered to be adults (over 18 years of age) with a primary diagnosis of ASD.
resultsIn total, 1290 studies were initially identified and 13 studies were included based on the inclusion and exclusion criteria outlined in a previous protocol paper. The analysis of these studies identified areas of concern to access appropriate healthcare, such as clinician knowledge, the environment, and life events.
conclusionIdentifying the barriers to healthcare, highlights ways healthcare services can regulate scope of practice, the physical environment, and the process of managing health conditions, thus, autistic adults can strive for optimal health. This review contributes to peer-reviewed evidence for future research and up-to-date information when developing and piloting health interventions for autistic adults. ETHICS AND DISSEMINATION: There are no human participants, data, or tissue being directly studied for the purposes of the review; therefore, ethics approval and consent to participate is not applicable. REGISTRATION AND STATUS: PROSPERO 2018 CRD42018116093.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.