ArticlePublic health genomics2020
Factors Influencing Participation in Biospecimen Research among Parents of Youth with Mental Health Conditions.
Article in Public health genomics, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 8 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
8 citing papers in PubMed.
- Lessons Learned in Clinical Trial Recruitment: A Partnership Between a Genomic Research Study and the Discover Together Biobank.Biopreservation and biobanking · 2026Review
- Self-collected biospecimen consent and return rates in a population-based study among women with ovarian cancer: insights from the ORCHiD study.Cancer causes & control : CCC · 2026Article
- Uncovering systemic barriers related to equity, diversity and inclusion in child health research: a scoping review addressing marginalised communities.BMJ global health · 2025Article
- Recruitment and retention of adolescents for an ecological momentary assessment measurement burst mental health study: The MHIM engagement strategy.Health expectations : an international journal of public participation in health care and health policy · 2024Article
- Characterizing participants who respond to text, email, phone calls, or postcards in a SARS-CoV-2 prevalence study.BMC public health · 2024Article
- Participation in genetic screening: testing different outreach methods across a diverse hospital system based patient population.Frontiers in genetics · 2023Article
- Facilitators and barriers to pediatric clinical trial recruitment and retention in rural and community settings: A scoping review of the literature.Clinical and translational science · 2022Article
- Pediatric biorepository participation during the COVID-19 pandemic: predictors of enrollment and biospecimen donation.BMC pediatrics · 2022Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
6 authors.
Funding
Abstract
introductionBiospecimens are tools that have the potential to improve early identification and treatment for autism spectrum disorders (ASD) and bipolar disorders (BPD). Unfortunately, most biobanks lack racial/ethnic diversity. One challenge to including a diverse sample of youth is recruiting and engaging families.
objectiveWe sought to better understand facilitators and barriers to participation in biospecimen research among a diverse group of parents of youth with ASD and BPD.
methodsThe current study involved 3 Mental Health Research Network sites. At each site, parents participated in an interview that explored attitudes and beliefs about genetic research. Interviews were audio-recorded, and audio files were transcribed and coded using content analysis.
resultsA total of 58 interviews were conducted. Four challenges emerged: (1) contacting and engaging potential research participants, (2) motivating potential participants to read recruitment and consent materials, (3) motivating participation in research, in general, and (4) motivating participation in research involving biospecimen donation, specifically.
conclusionsParticipants were eager to participate as long as the research process involved trust, clarity, and flexibility. Future research involving youth with mental health conditions would benefit from implementing multimodal strategies for recruitment and data collection and sharing knowledge gained by the research with study participants.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.