Evidence map›Paper›PMID 32696510›Full record

ArticleMuscle & nerve2021

Satisfaction with ankle foot orthoses in individuals with Charcot-Marie-Tooth disease.

Riccardo Zuccarino, Kirsten M Anderson, Michael E Shy, Jason M Wilken

Open access · greenAbstract read
In one paragraph

Article in Muscle & nerve, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 20 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
20citing papers in PubMed, 1 pooled it
2.4field-weighted citation impact, top 11% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

20 citing papers in PubMed, 1 synthesis or guideline pooled it, 41 citations in OpenAlex.

  1. Pooled it
  2. Trial
  3. Article
  4. Charcot-Marie-Tooth disease and related neuropathies.Nature reviews. Disease primers · 2026
    Review
  5. Article
  6. Article
  7. Article
  8. Review
  9. Article
  10. Article
  11. Effects of intensive rehabilitation on functioning in patients with mild and moderate Charcot-Marie-Tooth disease: a real-practice retrospective study.Neurological sciences : official journal of the Italian Neurological Society and of the Italian Society of Clinical Neurophysiology · 2024
    Article
  12. Article
  13. Article
  14. Article
  15. Article
  16. Review
  17. Charcot-Marie-Tooth neuropathy score and ambulation index are both predictors of orthotic need for patients with CMT.Neurological sciences : official journal of the Italian Neurological Society and of the Italian Society of Clinical Neurophysiology · 2022
    Article
  18. Review
  19. Article
  20. Article
4 · The record

Corrections and comments

5 · Who and what money

Authors and funding

4 authors at 1 institution in 1 country.

Riccardo ZuccarinoDepartment of Neurology, The University of Iowa Carver College of Medicine, Iowa City, Iowa.ORCID 0000-0002-8481-7899
Kirsten M AndersonDepartment of Physical Therapy and Rehab Science, The University of Iowa Carver College of Medicine, Iowa City, Iowa.
Michael E ShyDepartment of Neurology, The University of Iowa Carver College of Medicine, Iowa City, Iowa.
Jason M WilkenDepartment of Physical Therapy and Rehab Science, The University of Iowa Carver College of Medicine, Iowa City, Iowa.
University of Iowa · US

Funding

The University of Iowa Clinical and Translational Science AwardUL1TR002537 · NCATS · UNIVERSITY OF IOWA · PI HANSEN, MARLAN R, WINOKUR, PATRICIA · 2018 to 2022
$20.0M
trainingU54NS065712 · NINDS · WAYNE STATE UNIVERSITY · PI SHY, MICHAEL E. · 2009 to 2023
$19.6M
Genomic Studies in Charcot-Marie-Tooth DiseaseR01NS105755 · NINDS · UNIVERSITY OF MIAMI SCHOOL OF MEDICINE · PI SHY, MICHAEL E., ZUCHNER, STEPHAN · 2019 to 2023
$3.2M
Clinical Trial Readiness for Rare Diseases, Disorders and SyndromesR21TR003034 · NCATS · UNIVERSITY OF IOWA · PI SHY, MICHAEL E. · 2019 to 2020
$418k
NCATS NIH HHS R21 TR003034NCATS NIH HHS UL1 TR002537NINDS NIH HHS R01 NS105755NINDS NIH HHS U54 NS065712
6 · The paper itself

Abstract

backgroundAnkle foot orthoses (AFOs) are commonly prescribed to individuals with Charcot-Marie-Tooth disease (CMT). The aim of this study was to evaluate patient reported satisfaction with orthotic devices and services in individuals with CMT to provide preliminary data for advancing AFO development and improving clinical care.

methodsThe Orthotics and Prosthetics Users Survey was distributed via e-mail through the Inherited Neuropathy Consortium (INC) Contact Registry and includes 11 device-specific questions and 10 service-related questions. Participants were also asked open-ended questions about their experiences with AFOs.

resultsThree hundred and fourteen individuals completed the survey. Over one-third of participants provided negative responses, including dislike of AFO appearance, discomfort, abrasions or irritations, and pain. Ratings of orthotic services were generally positive.

conclusionsLower scores related to discomfort, abrasions and pain identified areas for AFO improvement. Continued research in these areas will be beneficial to informing and advancing AFO development and improving clinical care.

Indexed as

Personal SatisfactionSurveys and QuestionnairesAdolescentAdultAgedAged, 80 and overAnkleCharcot-Marie-Tooth DiseaseFemaleFootFoot OrthosesHumansMaleMiddle AgedYoung AdultAFOankle foot orthosesbracesCharcot Marie Tooth diseasesatisfactionsurvey

Identifiers

PMID32696510
PMCPMC7784614
OpenAlexW3044154002

What OpenQuestion holds

Textmetadata
LicenceTDM
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.