ArticleJournal of clinical & translational endocrinology2020
Identifying optimal survey-based algorithms to distinguish diabetes type among adults with diabetes.
Article in Journal of clinical & translational endocrinology, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 8 papers.
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Who cites it
8 citing papers in PubMed, 12 citations in OpenAlex.
- Cardiovascular Outcomes and Efficacy of the PCSK9 Inhibitor Evolocumab in Individuals With Type 1 Diabetes: Insights From the FOURIER Trial.Diabetes care · 2025 · on this mapTrial
- Prevalence of Delayed Insulin Initiation by Age at Diagnosis in US Adults with Type 1 Diabetes.Journal of general internal medicine · 2025Article
- Racial and ethnic disparities in preventive care among adults with type 1 diabetes: findings from the 2022 Behavioural Risk Factor Surveillance System.BMJ public health · 2025Article
- Prevalence of Type 1 Diabetes Among US Children and Adults by Age, Sex, Race, and Ethnicity.JAMA · 2024Article
- Inconsistencies in self-reported diabetes in a large panel study: the Survey of Health, Ageing and Retirement in Europe (SHARE).BMC medical research methodology · 2024Article
- Age at Diagnosis in U.S. Adults With Type 1 Diabetes.Annals of internal medicine · 2023Article
- Predicting misdiagnosed adult-onset type 1 diabetes using machine learning.Diabetes research and clinical practice · 2022Article
- Comparing health insurance data and health interview survey data for ascertaining chronic disease prevalence in Belgium.Archives of public health = Archives belges de sante publique · 2020Article
Corrections and comments
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Authors and funding
12 authors at 3 institutions in 1 country.
Funding
Abstract
objectivesSurveys for U.S. diabetes surveillance do not reliably distinguish between type 1 and type 2 diabetes, potentially obscuring trends in type 1 among adults. To validate survey-based algorithms for distinguishing diabetes type, we linked survey data collected from adult patients with diabetes to a gold standard diabetes type. RESEARCH DESIGN AND
methodsWe collected data through a telephone survey of 771 adults with diabetes receiving care in a large healthcare system in North Carolina. We tested 34 survey classification algorithms utilizing information on respondents' report of physician-diagnosed diabetes type, age at onset, diabetes drug use, and body mass index. Algorithms were evaluated by calculating type 1 and type 2 sensitivity, specificity, positive predictive value (PPV), and negative predictive value (NPV) relative to a gold standard diagnosis of diabetes type determined through analysis of EHR data and endocrinologist review of selected cases.
resultsAlgorithms based on self-reported type outperformed those based solely on other data elements. The top-performing algorithm classified as type 1 all respondents who reported type 1 and were prescribed insulin, as "other diabetes type" all respondents who reported "other," and as type 2 the remaining respondents (type 1 sensitivity 91.6%, type 1 specificity 98.9%, type 1 PPV 82.5%, type 1 NPV 99.5%). This algorithm performed well in most demographic subpopulations.
conclusionsThe major federal health surveys should consider including self-reported diabetes type if they do not already, as the gains in the accuracy of typing are substantial compared to classifications based on other data elements. This study provides much-needed guidance on the accuracy of survey-based diabetes typing algorithms.
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