ArticleJournal of clinical and translational science2020
Communicating and disseminating research findings to study participants: Formative assessment of participant and researcher expectations and preferences.
Article in Journal of clinical and translational science, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 27 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
27 citing papers in PubMed.
- Return of Research Results to Participants in Longitudinal Cohort Studies in Health Research: Findings From 24 Cohorts of the Amsterdam Cohort Hub.Health expectations : an international journal of public participation in health care and health policy · 2026Article
- Dissemination Strategies From an HIV Self-Testing Intervention Among Adolescents and Young Adults in Nigeria: Crowdsourcing Open Call Study.JMIR formative research · 2026Article
- Closing the Feedback Loop: Improving Communication of Findings With Aboriginal Research Participants Through Participatory Action Research.Health expectations : an international journal of public participation in health care and health policy · 2026Article
- Disseminating a Pediatric Oncology Critical Care Intervention in Latin America and Spain: An Integrated-Knowledge-Translation Approach.Global implementation research and applications · 2026Article
- How to optimise the use of innovative invasive devices: considerations for feasibility studies.Pilot and feasibility studies · 2026Article
- Closing the loop: Benefits and challenges of sharing clinical trial results with participants after trial close-out.BMC medical research methodology · 2026Article
- Bridging the gap: Community insights on effectively sharing research findings with the public.Journal of clinical and translational science · 2026Article
- Knowledge mapping of burnout among nursing professionals: A bibliometric study.International journal of nursing studies advances · 2025Article
- Evolution of journal rankings in orthopedics and sports medicine (2000-2024) : A SCImago-based bibliometric analysis.Orthopadie (Heidelberg, Germany) · 2025Article
- Developing Requirements for a Standardized System to Return Individual Research Results Back to Study Participants: Narrative Review.Interactive journal of medical research · 2025Review
- Advancing the impact of research through a dissemination-focused special interest group.BMJ open · 2025Review
- Returning Individualized Wearable Sensor Results to Older Adult Research Participants: A Pilot Study.The journals of gerontology. Series A, Biological sciences and medical sciences · 2025Article
- Patient and public involvement and engagement in critical care research in low and middle-income countries: challenges and solutions.Critical care science · 2025Article
- Qualitative insights from an online community-based exercise intervention for persons living with HIV.Frontiers in rehabilitation sciences · 2025Article
- Returning individual wearable sensor results to participants: perspectives on challenges and lessons learned.Frontiers in digital health · 2025Article
- Enhancing research ethics and protections for uninsured and underinsured research participants in clinical trials in the USA.Journal of clinical and translational science · 2025Article
- Dissemination innovation: Using found poetry to return study results to patients and partners facing cancer.PEC innovation · 2024Article
- Communicating research findings as a return of value to All of Us Research Program participants: insights from staff at Federally Qualified Health Centers.Journal of the American Medical Informatics Association : JAMIA · 2024Article
- Diversity, equity, and inclusivity in observational ambulatory assessment: Recommendations from two decades of Electronically Activated Recorder (EAR) research.Behavior research methods · 2024Article
- A series of workshops to present research findings and fill knowledge gap among adolescent girls and young women on sexual and reproductive health in Lebanon: An example of active knowledge dissemination.Journal of global health · 2023Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
6 authors.
Funding
Abstract
introductionTranslating research findings into practice requires understanding how to meet communication and dissemination needs and preferences of intended audiences including past research participants (PSPs) who want, but seldom receive, information on research findings during or after participating in research studies. Most researchers want to let others, including PSP, know about their findings but lack knowledge about how to effectively communicate findings to a lay audience.
methodsWe designed a two-phase, mixed methods pilot study to understand experiences, expectations, concerns, preferences, and capacities of researchers and PSP in two age groups (adolescents/young adults (AYA) or older adults) and to test communication prototypes for sharing, receiving, and using information on research study findings. PRINCIPAL
resultsPSP and researchers agreed that sharing study findings should happen and that doing so could improve participant recruitment and enrollment, use of research findings to improve health and health-care delivery, and build community support for research. Some differences and similarities in communication preferences and message format were identified between PSP groups, reinforcing the best practice of customizing communication channel and messaging. Researchers wanted specific training and/or time and resources to help them prepare messages in formats to meet PSP needs and preferences but were unaware of resources to help them do so.
conclusionsOur findings offer insight into how to engage both PSP and researchers in the design and use of strategies to share research findings and highlight the need to develop services and support for researchers as they aim to bridge this translational barrier.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.