Evidence map›Paper›PMID 32690071›Full record

ArticleBMC palliative care2020

Living and dying with incurable cancer: a qualitative study on older patients' life values and healthcare professionals' responsivity.

Jelle L P van Gurp, Anne Ebenau, Simone van der Burg, Jeroen Hasselaar

Open access · goldAbstract read
In one paragraph

Article in BMC palliative care, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 9 papers, 2 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
9citing papers in PubMed, 2 pooled it
1.3field-weighted citation impact, top 18% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

9 citing papers in PubMed, 2 syntheses or guidelines pooled it, 16 citations in OpenAlex.

  1. Pooled it
  2. Qualitative studies on men with prostate cancer: a systematic meta-synthesis.International journal of qualitative studies on health and well-being · 2025
    Pooled it
  3. Lived experiences of life with newly diagnosed advanced cancer - a qualitative interview study.International journal of qualitative studies on health and well-being · 2025
    Article
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

4 authors at 2 institutions in 1 country.

Jelle L P van GurpDepartment of IQ healthcare, Ethics of healthcare, Pain and Palliative Medicine, Radboud University Nijmegen Medical Center, P.O. Box 9101, 6500, HB, Nijmegen, The Netherlands.
Anne EbenauDepartment of IQ healthcare, Ethics of healthcare, Pain and Palliative Medicine, Radboud University Nijmegen Medical Center, P.O. Box 9101, 6500, HB, Nijmegen, The Netherlands. Anne.Ebenau@radboudumc.nl.ORCID http://orcid.org/0000-0001-8827-8725
Simone van der BurgWageningen Economic Research, Wageningen University & Research, Wageningen, Netherlands.
Jeroen HasselaarDepartment of IQ healthcare, Ethics of healthcare, Pain and Palliative Medicine, Radboud University Nijmegen Medical Center, P.O. Box 9101, 6500, HB, Nijmegen, The Netherlands.
Radboud University Nijmegen · NLWageningen University & Research · NL

Funding

KWF Kankerbestrijding KUN-2013-6466, 2013
6 · The paper itself

Abstract

backgroundIn ageing Western societies, many older persons live with and die from cancer. Despite that present-day healthcare aims to be patient-centered, scientific literature has little knowledge to offer about how cancer and its treatment impact older persons' various outlooks on life and underlying life values. Therefore, the aims of this paper are to: 1) describe outlooks on life and life values of older people (≥ 70) living with incurable cancer; 2) elicit how healthcare professionals react and respond to these.

methodsSemi-structured qualitative interviews with 12 older persons with advanced cancer and two group interviews with healthcare professionals were held and followed by an analysis with a grounded theory approach.

resultsSeveral themes and subthemes emerged from the patient interview study: a) handling incurable cancer (the anticipatory outlook on "a reduced life", hope and, coping with an unpredictable disease) b) being supported by others ("being there", leaving a legacy, and having reliable healthcare professionals) and; c) making end-of-life choices (anticipatory fears, and place of death). The group interviews explained how healthcare professionals respond to the abovementioned themes in palliative care practice. Some barriers for (open) communication were expressed too by the latter, e.g., lack of continuity of care and advance care planning, and patients' humble attitudes.

conclusionsOlder adults living with incurable cancer showed particular outlooks on life and life values regarding advanced cancer and the accompanying last phase of life. This paper could support healthcare professionals and patients in jointly exploring and formulating these outlooks and values in the light of treatment plans.

Indexed as

Attitude to DeathSocial ValuesAgedAged, 80 and overFemaleGeriatricsHumansInterviews as TopicMaleNeoplasmsQualitative ResearchQuality of Health CareAdvanced cancerLife valuesOlder personsPalliative carePatient outlooks on lifePatient perspective

Identifiers

PMID32690071
PMCPMC7372747
OpenAlexW3042699671

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.