ArticleJournal of the American Medical Informatics Association : JAMIA2020
Understanding enterprise data warehouses to support clinical and translational research.
Article in Journal of the American Medical Informatics Association : JAMIA, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 28 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
28 citing papers in PubMed, 36 citations in OpenAlex.
- Prognostic value of carcinoembryonic antigen kinetics in predicting distant metastatic recurrence of breast cancer: a multicenter cohort study.Annals of surgical treatment and research · 2026Article
- Clinical and translational science award hubs in learning health systems: development of the engine-drivetrain model.Journal of translational medicine · 2026Article
- A method to enable clinical and translational research teams with custom real-world data from electronic health record systems.Journal of clinical and translational science · 2026Article
- Development and validation of a computable phenotype for adolescent idiopathic scoliosis.Learning health systems · 2025Article
- Building a collaborative ecosystem across the IDeA-CTR networks in response to a public health emergency.Journal of clinical and translational science · 2025Article
- Building a healthcare data warehouse: considerations, opportunities, and challenges.Frontiers in digital health · 2025Review
- "Goldmine" or "big mess"? An interview study on the challenges of designing, operating, and ensuring the durability of Clinical Data Warehouses in France and Belgium.Journal of the American Medical Informatics Association : JAMIA · 2024Article
- Understanding enterprise data warehouses to support clinical and translational research: impact, sustainability, demand management, and accessibility.Journal of the American Medical Informatics Association : JAMIA · 2024Article
- The Iowa Health Data Resource (IHDR): an innovative framework for transforming the clinical health data ecosystem.Journal of the American Medical Informatics Association : JAMIA · 2024Article
- Linking Patient Encounters across Primary and Ancillary Electronic Health Record Systems: A Comparison of Two Approaches.ACI open · 2024Article
- Clinical Data Warehousing: A Scoping Review.Journal of the Society for Clinical Data Management · 2024Article
- Article
- The IMPACT framework and implementation for accessible in silico clinical phenotyping in the digital era.NPJ digital medicine · 2023Review
- Bridging the gap: A library-based collaboration to enhance data skills for clinical researchers.Learning health systems · 2023Article
- Preliminary Attainability Assessment of Real-World Data for Answering Major Clinical Research Questions in Breast Cancer Brain Metastasis: Framework Development and Validation Study.Journal of medical Internet research · 2023Article
- Enhancing an enterprise data warehouse for research with data extracted using natural language processing.Journal of clinical and translational science · 2023Article
- Geographic Information Systems as Data Sharing Infrastructure for Clinical Data Warehouses.Journal of the Society for Clinical Data Management · 2023Article
- Maturity in enterprise data warehouses for research operations: Analysis of a pilot study.Journal of clinical and translational science · 2023Article
- Nonspecific deidentification of date-like text in deidentified clinical notes enables reidentification of dates.Journal of the American Medical Informatics Association : JAMIA · 2022Article
- Improving Research Patient Data Repositories From a Health Data Industry Viewpoint.Journal of medical Internet research · 2022Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
4 authors at 4 institutions in 1 country.
Funding
Abstract
objectiveAmong National Institutes of Health Clinical and Translational Science Award (CTSA) hubs, adoption of electronic data warehouses for research (EDW4R) containing data from electronic health record systems is nearly ubiquitous. Although benefits of EDW4R include more effective, efficient support of scientists, little is known about how CTSA hubs have implemented EDW4R services. The goal of this qualitative study was to understand the ways in which CTSA hubs have operationalized EDW4R to support clinical and translational researchers. MATERIALS AND
methodsAfter conducting semistructured interviews with informatics leaders from 20 CTSA hubs, we performed a directed content analysis of interview notes informed by naturalistic inquiry.
resultsWe identified 12 themes: organization and data; oversight and governance; data access request process; data access modalities; data access for users with different skill sets; engagement, communication, and literacy; service management coordinated with enterprise information technology; service management coordinated within a CTSA hub; service management coordinated between informatics and biostatistics; funding approaches; performance metrics; and future trends and current technology challenges. DISCUSSION: This study is a step in developing an improved understanding and creating a common vocabulary about EDW4R operations across institutions. Findings indicate an opportunity for establishing best practices for EDW4R operations in academic medicine. Such guidance could reduce the costs associated with developing an EDW4R by establishing a clear roadmap and maturity path for institutions to follow.
conclusionsCTSA hubs described varying approaches to EDW4R operations that may assist other institutions in better serving investigators with electronic patient data.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.