ArticleAutism : the international journal of research and practice2020
Autism spectrum disorder/Takiwātanga: An Integrated Data Infrastructure-based approach to autism spectrum disorder research in New Zealand.
Article in Autism : the international journal of research and practice, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 28 papers, 1 of them a synthesis that pooled it.
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The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
28 citing papers in PubMed, 1 synthesis or guideline pooled it.
- The global prevalence of autism spectrum disorder: a comprehensive systematic review and meta-analysis.Italian journal of pediatrics · 2022Pooled it
- Mother and child health 4.5 years after gestational diabetes mellitus managed using tight or less tight targets for glycaemic control: Post-hoc follow-up study of the TARGET trial.PLoS medicine · 2026Trial
- Somatic, Psychiatric and Neurodevelopmental Comorbidities in People with Autism Spectrum Disorder (ASD): A Narrative Review.Healthcare (Basel, Switzerland) · 2026Review
- Intersections of Autism and Sexual and Gender Diversity Among Young People in New Zealand.Autism : the international journal of research and practice · 2026Article
- Article
- Prevalence and age of diagnosis of neurodevelopmental conditions among Asian populations in Aotearoa New Zealand.Journal of neurodevelopmental disorders · 2026Article
- Identification of autistic Māori in Aotearoa New Zealand: A national cross-sectional study.Autism : the international journal of research and practice · 2026Article
- Child and Family Characteristics as Predictors of the Severity of Self-injurious Behaviours in Autistic Children and Adolescents.Journal of autism and developmental disorders · 2026Article
- Data resource profile: education and health data in New Zealand's Integrated Data Infrastructure.International journal of population data science · 2026Article
- Enrolment, attendance, and education resourcing and support among 5-12 year old autistic students in Aotearoa New Zealand: a nationwide cross-sectional study.International journal of population data science · 2026Article
- Sex Similarities and Differences in Brain Dynamic Functional Connectivity Among Individuals With and Without Autism Spectrum Disorders.Human brain mapping · 2025Article
- Systematic Review and Meta-Analysis: Prevalence of Neurodevelopmental Disorders Among Indigenous Children.JAACAP open · 2025Article
- Methods used to construct disability indicators in linked administrative datasets: a systematic scoping review.Population health metrics · 2025Article
- Health service utilization among autistic youth in Aotearoa New Zealand: A nationwide cross-sectional study.Autism : the international journal of research and practice · 2025Article
- School Attendance Among Autistic Students in Aotearoa/New Zealand: A Population Cross-Sectional Study Using the Integrated Data Infrastructure.Journal of paediatrics and child health · 2025Article
- The global prevalence of autism spectrum disorder in children: a systematic review and meta-analysis.Osong public health and research perspectives · 2025Article
- Genetic diagnostic outcomes from a 10-year research programme in autism in Aotearoa New Zealand.Journal of the Royal Society of New Zealand · 2025Article
- Sociodemographic, mental health, education, employment and income characteristics of adults with obsessive-compulsive disorder who accessed secondary health services in Aotearoa | New Zealand.Journal of the Royal Society of New Zealand · 2025Article
- Mortality risk among Autistic children and young people: A nationwide birth cohort study.Autism : the international journal of research and practice · 2024Article
- Is parent education a factor in identifying autism/takiwātanga in an ethnic cohort of Pacific children in Aotearoa, New Zealand? A national cross-sectional study using linked administrative data.Autism : the international journal of research and practice · 2024Article
Corrections and comments
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Authors and funding
9 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
lay abstractNew Zealand has few estimates of the prevalence autism spectrum disorder and no national registry or data set to identify and track cases. This hinders the ability to make informed, evidence-based decisions relating to autism spectrum disorder. In this study, we utilised linked health and non-health data to develop a method for identifying cases of autism spectrum disorder among children and young people in New Zealand. In addition, we examined rates of co-occurring mental health, neurodevelopmental and related conditions among this cohort and compared these to the general population. The method identified almost 10,000 children and young people with autism spectrum disorder in New Zealand. Co-occurring mental health or related problems were found in over 68% of this group (nearly seven times higher than the general population), and around half were identified with multiple co-occurring conditions. The most frequently identified conditions were intellectual disability, disruptive behaviours and emotional problems. We have developed a useful method for monitoring service and treatment-related trends, number and types of co-occurring conditions and examining social outcomes among individuals with autism spectrum disorder. While the method may underestimate the prevalence of autism spectrum disorder in New Zealand, it provides a significant step towards establishing a more comprehensive evidence base to inform autism spectrum disorder-related policy.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.