ArticleSSM - population health2020
"Life or death": Experiences of insulin insecurity among adults with type 1 diabetes in the United States.
Article in SSM - population health, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 17 papers, 1 of them a synthesis that pooled it.
What it found
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The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
17 citing papers in PubMed, 1 synthesis or guideline pooled it, 32 citations in OpenAlex.
- Subtypes of Insulin Restriction in Diabetes Management: A Systematic Review.Current diabetes reports · 2025Pooled it
- Pediatric Type 1 Diabetes Care in Indonesia: A Review of Current Challenges and PracticeJournal of clinical research in pediatric endocrinology · 2025Review
- Family member involvement when multiple family members have type 1 diabetes.Diabetic medicine : a journal of the British Diabetic Association · 2025Article
- Quantifying the Human Mortality Costs of Patent-based Intellectual Property: How Many Premature Deaths are due to Patents?Health care analysis : HCA : journal of health philosophy and policy · 2025Article
- Insights on Improving Health Insurance Literacy in Diabetes.The Journal of clinical endocrinology and metabolism · 2025Review
- Insulin Insecurity and Its Subsequent Impact on Emerging Adults and Families of Children With Type 1 Diabetes.Diabetes spectrum : a publication of the American Diabetes Association · 2025Article
- "Can I afford to live today?" The emotional toll of navigating the healthcare system with type 1 diabetes.Frontiers in endocrinology · 2025Article
- Lessons From Insulin: Policy Prescriptions for Affordable Diabetes and Obesity Medications.Diabetes care · 2024Review
- Association Between Rental Assistance Programs and Undiagnosed Diabetes Among U.S.Journal of general internal medicine · 2024Article
- Effect of a Dietary Intervention on Insulin Requirements and Glycemic Control in Type 1 Diabetes: A 12-Week Randomized Clinical Trial.Clinical diabetes : a publication of the American Diabetes Association · 2024Article
- Financial stress in emerging adults with type 1 diabetes: a mini review integrating lessons from cancer research.Frontiers in clinical diabetes and healthcare · 2024Review
- Navigating barriers to affording and obtaining insulin and diabetes supplies.Journal of diabetes · 2023Article
- Global diabetes burden: analysis of regional differences to improve diabetes care.BMJ open diabetes research & care · 2022Article
- GoFundMe as a Medical Plan: Ecological Study of Crowdfunding Insulin Success.JMIR diabetes · 2022Article
- Nanotechnology in Immunotherapy for Type 1 Diabetes: Promising Innovations and Future Advances.Pharmaceutics · 2022Review
- How Do We Move Type 1 Diabetes Immunotherapies Forward During the Current COVID-19 Pandemic?Diabetes · 2021Review
- Public Perspectives on Anti-Diabetic Drugs: Exploratory Analysis of Twitter Posts.JMIR diabetes · 2021Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
3 authors at 1 institution in 1 country.
Funding
Abstract
objectiveInsulin access for people with diabetes is a growing public health concern and particularly important for people with type 1 diabetes (T1D) who depend on insulin for survival. However, few studies have examined the psychosocial contexts in which people with T1D confront, navigate, and attempt to resolve insulin access barriers (IABs). We conducted a qualitative study to: 1) describe factors affecting insulin access among adults with T1D, 2) characterize behavioral and emotional responses to IABs, and 3) understand the overall impact of IABs on the lives of adults with T1D.
methodsWe recruited a geographically and age diverse sample of U.S. adults with T1D (
findingsParticipants conceptualized the experience of being without insulin as a "life or death" emergency, which significantly influenced their subsequent behavioral and emotional responses to compromised insulin access. Participants also described multiple IABs including unaffordable health care, institutional unresponsiveness, and major life transitions. Unable to consistently depend on the U.S. healthcare system to address their insulin needs, participants described taking strategic actions to maximize their existing insulin supplies, obtain more insulin, and create long-term security against future IABs. These strategies were not always successful and often negatively impacted participants' health, finances, careers, relationships, and future opportunities.
conclusionsDisruptions in insulin access or the threat of future disruption, a concept we term "insulin insecurity," is a barrier to health and well-being among people with T1D. Our findings suggest the U.S. healthcare system is ill-equipped to address insulin needs among adults with T1D.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.