ArticleCancer reports (Hoboken, N.J.)2020
Patients' illness narratives-From being healthy to living with incurable cancer: Encounters with doctors through the disease trajectory.
Article in Cancer reports (Hoboken, N.J.), 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 7 papers.
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Who cites it
7 citing papers in PubMed.
- "Struck down by cancer with no old life to fall back on" a clinical study of illness experiences among Norwegian adolescent and young adult cancer survivors investigating the ethical implications of their illness narratives.Cancer reports (Hoboken, N.J.) · 2023Trial
- Communicative Rationality and Clinical Decision-Making: A Habermasian Perspective on the Doctor-Patient Relationship.Journal of evaluation in clinical practice · 2026Review
- Narrative Medicine: theory, clinical practice and education - a scoping review.BMC health services research · 2024Article
- The Effect of COVID-19 on Middle-Aged Adults' Mental Health: A Mixed-Method Case-Control Study on the Moderating Effect of Cognitive Reserve.Healthcare (Basel, Switzerland) · 2024Article
- Using Whiteboard Animation and Patient Narratives for Learning Clinical Ophthalmology: Student Perspectives.Advances in medical education and practice · 2023Article
- Living With a Trifecta of Pain and Cancer With Personal Reflections of COVID-19.Journal of patient experience · 2020Article
- Patients' illness narratives-From being healthy to living with incurable cancer: Encounters with doctors through the disease trajectory.Cancer reports (Hoboken, N.J.) · 2020Article
Corrections and comments
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Authors and funding
3 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundNarrative medicine emphasizes how stories can increase the understanding of patients' experiences and give important insights into how patients interpret and strive to make meaning in the situation they find themselves in.
aimThe aim of this study was to gain insight into the illness narratives of cancer patients, from the day they suspected that something was wrong until living with incurable cancer. METHODS AND
resultsSix men and seven women, aged 47 to 79 years, diagnosed with metastatic cancer and undergoing chemotherapy with life-prolonging intent in an oncology outpatient clinic, were asked to tell their illness stories as freely as possible, without guiding questions. Stories were tape recorded, transcribed, and analyzed by a thematic narrative analysis. Encounters with doctors through the disease trajectory were highlighted by all narrators. Several informants described poor communication and consequences in the form of "doctors delay" and substandard psychosocial care. Continuity in follow-up and the physician's ability or inability to break bad news and adapt information to the patient's wishes and preferences were particularly emphasized.
conclusionA key finding was the importance of the doctor's role throughout the whole trajectory. A good doctor-patient relationship was characterized by continuity of care in follow-up, and trust acquired over time, based on the physician's thorough medical knowledge combined with sensitive communication and empathy.
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