ArticleThe Gerontologist2020
Dementia Caregiving Research: Expanding and Reframing the Lens of Diversity, Inclusivity, and Intersectionality.
Article in The Gerontologist, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 81 papers, 3 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
81 citing papers in PubMed, 3 syntheses or guidelines pooled it.
- Mapping intersectionality in dementia care research: a decadal scoping review.Frontiers in dementia · 2026Pooled it
- Intersectional research on dementia care for post-migrants and ethnic minority groups: a scoping review.Frontiers in dementia · 2025Pooled it
- Health Care-Related Tasks of Informal Dementia Caregivers in the U.S.: A Systematic Review with Narrative Synthesis.Inquiry : a journal of medical care organization, provision and financingPooled it
- Self-efficacy change among diverse family caregivers in dementia care.The journals of gerontology. Series B, Psychological sciences and social sciences · 2026Trial
- Two-year follow-up of dementia caregivers after a digital health intervention WECARE: a mixed-method study.Aging & mental health · 2025Trial
- Health Trajectories of Skilled Nursing Facility Patients With Alzheimer's Disease and Related Dementias: Evidence for Practicing Nurses.Journal of gerontological nursing · 2024Trial
- Differential race effects of the tailored activity program (TAP) on dementia-related behaviors: A randomized controlled trial.Journal of the American Geriatrics Society · 2022Trial
- Awareness of Family Caregiver Resources and Alignment with Traditional Culture in a Midwest Tribal Nation in the United States.Journal of community health · 2026Article
- Stress and coping experiences of Black family cancer caregivers: a qualitative investigation.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2026Article
- Multicomponent Behavior Change Technique Intervention for Caregivers of People With Alzheimer Disease and Related Dementias: Protocol for a Single-Arm, Personalized Behavioral Trial to Disrupt Sedentary Time.JMIR research protocols · 2026Article
- Words matter: an examination of terminology to define culturally informed dementia caregiving interventions.The Gerontologist · 2026Article
- Protocol for a single-arm, multi-component behavior change technique (BCT) intervention to develop a walking habit among caregivers for persons with Alzheimer disease and related dementias (ADRD).Contemporary clinical trials · 2026Article
- Racial and Ethnic Differences in Caregiving Networks and Unmet Care Needs Among People Living With Cognitive Impairment.Research on aging · 2026Article
- Article
- "But Then They Don't Use the Same Money to Give Us Services": Attitudes and Perspectives on Dementia Care Community-Based Research in Hispanic Communities.Journal of applied gerontology : the official journal of the Southern Gerontological Society · 2026Article
- Employment and financial experiences in millennial family caregivers.Frontiers in public health · 2026Article
- Improving Respite Outcomes for Caregivers: Who Benefits and Under What Conditions?Journal of applied gerontology : the official journal of the Southern Gerontological Society · 2025Article
- Evolution of shared care networks by race and ethnicity: findings from the National Health and Aging Trends Study.The journals of gerontology. Series B, Psychological sciences and social sciences · 2025Article
- Reflecting upon Session 8 of the 2023 dementia care summit: Diversity beyond outreach, recruitment, and retention.Alzheimer's & dementia : the journal of the Alzheimer's Association · 2025Article
- The longitudinal impacts of secondary caregiver networks on primary caregiver's social isolation and depression.Innovation in aging · 2025Article
21 more citing papers are in PubMed but not listed here.
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
3 authors.
Funding
Abstract
This forum expands and reframes the lens of dementia caregiving research among diverse racial and ethnic groups to better understand the unique needs, stressors, and strengths of multicultural and racial-ethnic family caregivers in the United States. By providing more diverse and inclusive knowledge on caregiving to older adults in the United States, we can create a new path forward with regards to caregiving research. Throughout the article, major questions and answers are supported by critiquing some of the caregiving literature. Discussions are provided to help create inclusive ways of conceptualizing caregiving research and using methodological approaches to reflect the diversity of caregivers and care recipients in the United States. Expanding and reframing the conceptual and methodological lens of diversity, inclusivity and intersectionality can provide evidence to support effective policy, practice, and care in addressing the needs of diverse groups of caregivers and older adults living with dementia.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.