ArticleHRB open research2020
COVID-19: Public and patient involvement, now more than ever.
Article in HRB open research, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 25 papers, 2 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
25 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- COVID-19 Public Health Measures and Patient and Public Involvement in Health and Social Care Research: An Umbrella Review.International journal of environmental research and public health · 2023Pooled it
- Meaningful patient and public involvement in digital health innovation, implementation and evaluation: A systematic review.Health expectations : an international journal of public participation in health care and health policy · 2022Pooled it
- Involving older people in co-designing an intervention to reverse frailty and build resilience.Family practice · 2022Trial
- Integrating patient and public involvement during the COVID-19 pandemic: lessons from COVID-clinical neuroscience study.Research involvement and engagement · 2025Article
- Production and use of rapid responses during the COVID-19 pandemic in Quebec (Canada): perspectives from evidence synthesis producers and decision makers.Health research policy and systems · 2024Article
- Embedding formal and experiential public and patient involvement training in a structured PhD programme: process and impact evaluation.Research involvement and engagement · 2023Article
- Article
- Adapting Patient and Public Involvement processes in response to the Covid-19 pandemic.Health expectations : an international journal of public participation in health care and health policy · 2023Article
- Voices of society: the emergence of civil-society practices aiming to engage in the management of the COVID-19 pandemic in the Netherlands.BMJ global health · 2023Article
- Creating space for theory when codesigning healthcare interventions.Journal of evaluation in clinical practice · 2023Article
- HIV in MOTION: a community of practice on physical rehabilitation for and by people living with HIV and their allies.Frontiers in rehabilitation sciences · 2023Article
- Creating a provincial post COVID-19 interdisciplinary clinical care network as a learning health system during the pandemic: Integrating clinical care and research.Learning health systems · 2023Article
- Article
- Methodological guidance for incorporating equity when informing rapid-policy and guideline development.Journal of clinical epidemiology · 2022Article
- Reimagining consumer involvement: Resilient system indicators in the COVID-19 pandemic response in New South Wales, Australia.Health expectations : an international journal of public participation in health care and health policy · 2022Article
- Study protocol for the St James's Hospital, Tallaght University Hospital, Trinity College Dublin Allied Researchers' (STTAR) Bioresource for COVID-19.HRB open research · 2022Article
- Risk, responsibility, and choice in research ethics.The lancet. Psychiatry · 2022Article
- Article
- (Re)defining legitimacy in Canadian drug assessment policy? Comparing ideas over time.Health economics, policy, and law · 2021Article
- Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
10 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
The research community is responding with speed to the COVID-19 pandemic, with rapid response mechanisms to fund research, shortened application turnaround times, and expedited research ethics processes. Public and patient involvement (PPI) is under pressure in this rapid response research, where it is easy for researchers and funders to dismiss PPI as non-essential, an added extra, a "nice to have". In this open letter, we, researchers and PPI contributors, argue that PPI is important, now more than ever. The pandemic is impacting everyone in society, with normal rules of engagement discarded. The solution to overcoming this virus will come from many different sources and many changes will emerge to healthcare delivery and to how we live our lives. It is essential that the research to find solutions is shaped by all who will be impacted: the public and the patient must be central contributors and their voice must be hear.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.