ArticleMultiple sclerosis (Houndmills, Basingstoke, England)2020
COVID-19 in people with multiple sclerosis: A global data sharing initiative.
Article in Multiple sclerosis (Houndmills, Basingstoke, England), 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 38 papers, 2 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
38 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- Psychological impacts of COVID-19 pandemic on individuals living with multiple sclerosis: A rapid systematic review.Multiple sclerosis and related disorders · 2022Pooled it
- COVID-19 Among Patients With Multiple Sclerosis: A Systematic Review.Neurology(R) neuroimmunology & neuroinflammation · 2021Pooled it
- Integrating big data and artificial intelligence to predict progression in multiple sclerosis: challenges and the path forward.Journal of neuroengineering and rehabilitation · 2025Review
- Personalized federated learning for predicting disability progression in multiple sclerosis using real-world routine clinical data.NPJ digital medicine · 2025Article
- Accessible Ecosystem for Clinical Research (Federated Learning for Everyone): Development and Usability Study.JMIR formative research · 2024Article
- Introducing a core dataset for real-world data in multiple sclerosis registries and cohorts: Recommendations from a global task force.Multiple sclerosis (Houndmills, Basingstoke, England) · 2024Article
- Prognostic indicators for hospitalization and ICU admission in people with multiple sclerosis and COVID-19: an analysis of the COVID-19 in MS global data sharing initiative dataset.Annals of medicine and surgery (2012) · 2024Article
- Era of COVID-19 in Multiple Sclerosis Care.Neurologic clinics · 2024Review
- Patient level dataset to study the effect of COVID-19 in people with Multiple Sclerosis.Scientific data · 2024Article
- The arisal of data spaces: why I am excited and worried.Frontiers in immunology · 2024Article
- The Journey of Data Within a Global Data Sharing Initiative: A Federated 3-Layer Data Analysis Pipeline to Scale Up Multiple Sclerosis Research.JMIR medical informatics · 2023Article
- Updated Results of the COVID-19 in MS Global Data Sharing Initiative: Anti-CD20 and Other Risk Factors Associated With COVID-19 Severity.Neurology(R) neuroimmunology & neuroinflammation · 2022Article
- Controversies in neuroimmunology: multiple sclerosis, vaccination, SARS-CoV-2 and other dilemasBiomedica : revista del Instituto Nacional de Salud · 2022Article
- Severity of COVID19 infection among patients with multiple sclerosis treated with interferon-β.Multiple sclerosis and related disorders · 2022Article
- Increased risk of death from COVID-19 in multiple sclerosis: a pooled analysis of observational studies.Journal of neurology · 2022Article
- Intersection of Health Informatics Tools and Community Engagement in Health-Related Research to Reduce Health Inequities: Scoping Review.Journal of participatory medicine · 2021Article
- Associations of Disease-Modifying Therapies With COVID-19 Severity in Multiple Sclerosis.Neurology · 2021Article
- COVID-19 Infection in Fingolimod- or Siponimod-Treated Patients: Case Series.Neurology(R) neuroimmunology & neuroinflammation · 2021Article
- 37th Congress of the European Committee for Treatment and Research in Multiple Sclerosis (ECTRIMS 2021): 13-15 October, 2021.Pharmaceutical medicine · 2021Article
- Clinical Features of COVID-19 on Patients With Neuromyelitis Optica Spectrum Disorders.Neurology(R) neuroimmunology & neuroinflammation · 2021Observational
Corrections and comments
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Authors and funding
48 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundWe need high-quality data to assess the determinants for COVID-19 severity in people with MS (PwMS). Several studies have recently emerged but there is great benefit in aligning data collection efforts at a global scale.
objectivesOur mission is to scale-up COVID-19 data collection efforts and provide the MS community with data-driven insights as soon as possible.
methodsNumerous stakeholders were brought together. Small dedicated interdisciplinary task forces were created to speed-up the formulation of the study design and work plan. First step was to agree upon a COVID-19 MS core data set. Second, we worked on providing a user-friendly and rapid pipeline to share COVID-19 data at a global scale.
resultsThe COVID-19 MS core data set was agreed within 48 hours. To date, 23 data collection partners are involved and the first data imports have been performed successfully. Data processing and analysis is an on-going process.
conclusionsWe reached a consensus on a core data set and established data sharing processes with multiple partners to address an urgent need for information to guide clinical practice. First results show that partners are motivated to share data to attain the ultimate joint goal: better understand the effect of COVID-19 in PwMS.
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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.