ArticleHealth expectations : an international journal of public participation in health care and health policy2020
How to identify, incorporate and report patient preferences in clinical guidelines: A scoping review.
Article in Health expectations : an international journal of public participation in health care and health policy, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 27 papers, 5 of them syntheses that pooled it.
What it found
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The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
27 citing papers in PubMed, 5 syntheses or guidelines pooled it.
- Preoperative carbohydrate loading: evolution, trends, and future directions.Frontiers in nutrition · 2026Pooled it
- A systematic review and quality appraisal of guidelines and recommendations for home enteral tube feeding in adults.European journal of clinical nutrition · 2025Pooled it
- Society of American Gastrointestinal and Endoscopic Surgeons guidelines development: patient engagement update to standard operating procedure.Surgical endoscopy · 2025Guideline
- Clinical guidelines for the management of mammographic density: a systematic review of breast screening guidelines worldwide.JNCI cancer spectrum · 2024Pooled it
- Evidence-based recommendations for the rehabilitation and management of the ageing population with spinal cord injury: a systematic review of clinical practice guidelines.European journal of physical and rehabilitation medicine · 2024Pooled it
- Effects of an interactive web-based support system via mobile phone on preference-based patient participation in patients living with hypertension - a randomized controlled trial in primary care.Scandinavian journal of primary health care · 2024Trial
- Identifying unmet needs in food protein-induced enterocolitis syndrome using search query analysis and a large language model.The journal of allergy and clinical immunology. Global · 2026Article
- A Qualitative Analysis of Patient Perspectives and Preferences in Lupus Management to Guide Lupus Guidelines Development.Arthritis care & research · 2026Article
- Understanding patient preferences, experiences and engagement with ambulatory heart rhythm monitoring: a scoping review.BMJ open · 2026Article
- Contextual Factors Affecting Evidence-Based Practice in Orthopaedic Nursing and Rehabilitation: A Mixed Methods Study.Journal of advanced nursing · 2026Article
- Patient and Public Involvement Reporting Consistency: Analysis of 24 Clinical Practice Guidelines From 4 Countries.Clinical and public health guidelines · 2026Article
- From global guidelines for cardio-kidney-metabolic diseases management to national implementation: perspectives from the guideline workshop taskforce.Cardiovascular diabetology · 2026Article
- Community engagement in health guidelines and other normative products: a methodological review.Bulletin of the World Health Organization · 2025Review
- Multifunctional nanosponges in cancer therapy: Integrating targeted drug delivery and theranostic potential.International journal of pharmaceutics: X · 2025Review
- Preferences of Adolescents and Young Adults With Epilepsy and Caregivers on Reproductive Health Counseling by Neurologists: A Concept Mapping Study.Pediatric neurology · 2025Article
- Article
- Do clinical guidelines support person-centred care for women affected by dementia: A content analysis.Dementia (London, England) · 2024Article
- Capturing Emerging Experiential Knowledge for Vaccination Guidelines Through Natural Language Processing: Proof-of-Concept Study.Journal of medical Internet research · 2023Article
- Patient preferences for epilepsy treatment: a systematic review of discrete choice experimental studies.Health economics review · 2023Review
- Patients' experience with a community pharmacy fall prevention service.Exploratory research in clinical and social pharmacy · 2023Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
4 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundClinical guidelines optimize care delivery and outcomes. Guidelines support patient engagement and adherence if they reflect patient preferences for treatment options, risks and benefits. Many guidelines do not address patient preferences. Developers require insight on how to develop such guidelines.
objectiveTo conduct a scoping review on how to identify, incorporate and report patient preferences in guidelines. SEARCH: We searched MEDLINE, EMBASE, Scopus, CINAHL, OpenGrey and GreyLit from 2010 to November 2019. ELIGIBILITY: We included English language studies describing patient preferences and guidelines. DATA EXTRACTION AND SYNTHESIS: We reported approaches for and determinants and impacts of identifying patient preferences using summary statistics and text, and interpreted findings using a conceptual framework of patient engagement in guideline development.
resultsSixteen studies were included: 2 consulted patients and providers about patient engagement approaches, and 14 identified patient preferences (42.9%) or methods for doing so (71.4%). Studies employed single (57.1%) or multiple (42.9%) methods for identifying preferences. Eight (57.1%) incorporated preferences in one aspect of guideline development, while 6 (42.9%) incorporated preferences in multiple ways, most commonly to identify questions, benefits or harms, and generate recommendations. Studies did not address patient engagement in many guideline development steps. Included studies were too few to establish the best approaches for identifying or incorporating preferences. Fewer than half of the studies (7, 43.8%) explored barriers. None examined reporting preferences in guidelines.
conclusionsResearch is needed to establish the single or multiple approaches that result in incorporating and reporting preferences in all guideline development steps.
Indexed as
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.