ArticlePediatric quality & safety
Optimizing High-risk Infant Follow-up in Nonresearch-based Paradigms: The New England Follow-up Network.
Article in Pediatric quality & safety. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 16 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
16 citing papers in PubMed, 24 citations in OpenAlex.
- Engaging families to improve high-risk infant follow-up participation: a mixed methods study.Journal of perinatology : official journal of the California Perinatal Association · 2026Article
- Barriers and facilitators to neurodevelopmental follow-up among at-risk newborns across Washington State.Journal of perinatology : official journal of the California Perinatal Association · 2026Article
- Influence of a comprehensive BPD follow-up clinic on one-year outcomes of patients with bronchopulmonary dysplasia discharged on home supplemental oxygen therapy.Journal of perinatology : official journal of the California Perinatal Association · 2026Article
- Barriers and facilitators to neurodevelopmental follow-up among at-risk newborns across Washington State.Research square · 2026Article
- High-risk infant follow-up: current practice and factors determining eligibility.Pediatric research · 2026Article
- Engagement With Recommended Developmental Follow-up and Supports Among Infants With Intrauterine Opioid Exposure.Journal of developmental and behavioral pediatrics : JDBP · 2025Article
- The role of neighborhood on preterm birth among a high-risk group of birthing people in Boston, MA.BMC pregnancy and childbirth · 2024Article
- Impact of COVID-19 on Infants followed after Discharge from the Neonatal Intensive Care Unit Using a Telemedicine Model.American journal of perinatology · 2024Article
- Article
- Implementing neurodevelopmental follow-up care for children with congenital heart disease: A scoping review with evidence mapping.Developmental medicine and child neurology · 2024Article
- Ensuring Optimal Outcomes for Preterm Infants after NICU Discharge: A Life Course Health Development Approach to High-Risk Infant Follow-Up.Children (Basel, Switzerland) · 2024Review
- Organizational Health Literacy as a Tool for Health Equity: Application in a High-Risk Infant Follow-Up Program.Children (Basel, Switzerland) · 2023Article
- Racial Inequity in High-Risk Infant Follow-Up Among Extremely Low Birth Weight Infants.Pediatrics · 2023Article
- Continuing Care For Critically Ill Children Beyond Hospital Discharge: Current State of Follow-up.Hospital pediatrics · 2022Article
- Race, language, and neighborhood predict high-risk preterm Infant Follow Up Program participation.Journal of perinatology : official journal of the California Perinatal Association · 2022Article
- Synthesizing Interest-holder Perspectives and Evidence-based Potentially Better Practices to Improve High-risk Infant Follow-through Care Quality.Pediatric quality & safetyArticle
Corrections and comments
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Authors and funding
9 authors at 2 institutions in 2 countries.
Funding
Abstract
objectivesTo establish the first regional quality improvement collaborative solely dedicated to follow-through care of high-risk infants after Neonatal intensive care unit (NICU) discharge and to characterize extremely low birth weight (ELBW) follow-up in New England.
methodsEleven of 14 follow-up programs in New England partnered with the Vermont Oxford Network (VON) ELBW project for an initial data collection project. We collected information about the health status and developmental outcomes of infants born ≤1,000 g or younger than 28 weeks 2014-2016 at the 18-24 months corrected for gestational age (CGA) follow-up visit. VON collected and compiled the data.
resultsOf 993 eligible infants, 516 (52.0%) had follow-up visits. The rehospitalization rate was 33.9%, mostly respiratory illness. Ninety-six children (19.3%) had weight less than 10th percentile and 44 (8.9%) had weight less than third percentile at 18-24 months. Only 170 (61.4%) children had recommended hearing screening after NICU discharge. Forty-six (9.1%) had cerebral palsy; 81 of the 441 infants that completed all 3 sections of the Bayley Scales of Infant Development, third edition (18.4%) had any composite score less than 70. Over half of the social and demographic data were missing.
conclusionMost quality initiatives in neonatology stop at NICU discharge. This first project by the New England Follow-up Network showed a low rate for clinical follow-up. It demonstrated many opportunities to improve postdischarge follow-through specific to NICU-based care. Future projects will aim to improve the quality of follow-through services through collaborative learning, data sharing, and comparative outcomes.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.