ArticleQuality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation2021
Using an implementation science approach to implement and evaluate patient-reported outcome measures (PROM) initiatives in routine care settings.
Article in Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 177 papers, 11 of them syntheses that pooled it.
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Who cites it
177 citing papers in PubMed, 11 syntheses or guidelines pooled it.
- Barriers and facilitators for implementing patient-reported outcome measures in oncology practices: an umbrella review.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2026Pooled it
- Implementing patient-centred outcome measures in palliative care clinical practice. An updated systematic review of facilitators and barriers.BMC palliative care · 2026Pooled it
- The odds of developing asthma and wheeze among children and adolescents exposed to particulate matter: asystematic review and meta-analysis.BMC public health · 2025Pooled it
- Understanding factors impacting patient-reported outcome measures integration in routine clinical practice: an umbrella review.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2024Pooled it
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- Implementation of child-centred outcome measures in routine paediatric healthcare practice: a systematic review.Health and quality of life outcomes · 2023Pooled it
- Implementation of Patient-Reported Outcome Measures for Gender-Affirming Care Worldwide: A Systematic Review.JAMA network open · 2023Pooled it
- Facilitators and barriers to implementing electronic patient-reported outcome and experience measures in a health care setting: a systematic review.Journal of patient-reported outcomes · 2023Pooled it
- A systematic review of patient-reported outcome measures in paediatric endocrinology.BMC endocrine disorders · 2022Pooled it
- Automated conversational agents for post-intervention follow-up: a systematic review.BJS open · 2021Pooled it
- Assessing the engagement of children and families in selecting patient-reported outcomes (PROs) and developing their measures: a systematic review.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2021Pooled it
- Providers' perspectives on implementing alert-based patient-reported outcome monitoring for stage IV breast cancer.Journal of patient-reported outcomes · 2026Trial
- Quality of life during electronic patient-reported outcome (ePRO) monitoring in thoracic surgery patients: a pilot randomized controlled trial.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2026Trial
- First-time use of electronic patient-reported outcome measures in a cluster randomized trial: a qualitative study.Journal of patient-reported outcomes · 2025Trial
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- Psychometric evaluation of the MEDication Literacy Assessment in Geriatric Patients and Informal Caregivers (MED-fLAG) instrument using Rasch analyses in a sample of hospitalised older adults.International journal of nursing studies advances · 2026Article
- Translating scores into meaning: a co-produced forum for patient-reported outcome measure interpretation in pediatric congenital heart disease.Research involvement and engagement · 2026Article
- Multilevel factors associated with nonresponse to patient-reported outcome measures in routine radiation oncology care.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2026Article
- Fatigue: assess and address it.Journal of patient-reported outcomes · 2026Article
117 more citing papers are in PubMed but not listed here.
Corrections and comments
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Authors and funding
6 authors.
Funding
Abstract
purposePatient-reported outcome and experience measures (PROMs/PREMs) are well established in research for many health conditions, but barriers persist for implementing them in routine care. Implementation science (IS) offers a potential way forward, but its application has been limited for PROMs/PREMs.
methodsWe compare similarities and differences for widely used IS frameworks and their applicability for implementing PROMs/PREMs through case studies. Three case studies implemented PROMs: (1) pain clinics in Canada; (2) oncology clinics in Australia; and (3) pediatric/adult clinics for chronic conditions in the Netherlands. The fourth case study is planning PREMs implementation in Canadian primary care clinics. We compare case studies on barriers, enablers, implementation strategies, and evaluation.
resultsCase studies used IS frameworks to systematize barriers, to develop implementation strategies for clinics, and to evaluate implementation effectiveness. Across case studies, consistent PROM/PREM implementation barriers were technology, uncertainty about how or why to use PROMs/PREMs, and competing demands from established clinical workflows. Enabling factors in clinics were context specific. Implementation support strategies changed during pre-implementation, implementation, and post-implementation stages. Evaluation approaches were inconsistent across case studies, and thus, we present example evaluation metrics specific to PROMs/PREMs.
conclusionMultilevel IS frameworks are necessary for PROM/PREM implementation given the complexity. In cross-study comparisons, barriers to PROM/PREM implementation were consistent across patient populations and care settings, but enablers were context specific, suggesting the need for tailored implementation strategies based on clinic resources. Theoretically guided studies are needed to clarify how, why, and in what circumstances IS principles lead to successful PROM/PREM integration and sustainability.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.