ReviewJournal of Parkinson's disease2020
What People with Parkinson's Disease Want.
Review in Journal of Parkinson's disease, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 28 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
28 citing papers in PubMed, 1 synthesis or guideline pooled it, 44 citations in OpenAlex.
- Neuroinflammation in Parkinson's Disease: From Gene to Clinic: A Systematic Review.International journal of molecular sciences · 2023Pooled it
- Client Perceptions of the Individual Packer Managing Fatigue Program: A Mixed-Method Evaluation.OTJR : occupation, participation and health · 2024Trial
- Digital Intervention Promoting Physical Activity in People Newly Diagnosed with Parkinson's Disease: Feasibility and Acceptability of the Knowledge, Exercise-Efficacy and Participation (KEEP) Intervention.Journal of Parkinson's disease · 2024Trial
- Rethinking the concept of disease modification in an evolving Parkinson's disease treatment landscape.Journal of Parkinson's disease · 2026Review
- A Holistic Wellness Prescription for Parkinson's Disease: Evidence-Based Perspectives and Unmet Needs.Movement disorders clinical practice · 2026Review
- Fear of progression in Parkinson's disease: Role of age and occupational status.Journal of Parkinson's disease · 2026Article
- Experiences of Australians Living With Parkinson's Disease.Parkinson's disease · 2026Article
- Centering the person in development of a model of care for people with Parkinson's disease: a qualitative study.Disability and rehabilitation · 2025Article
- Connexin 43 is downregulated in advanced Parkinson's disease in multiple brain regions which correlates with symptoms.Scientific reports · 2025Article
- Net Health System Costs of Parkinson Disease: A Propensity Score-Matched Health Administrative Data Cohort Study in Ontario, Canada.Neurology. Clinical practice · 2025Article
- A Rural Health Model for Parkinson's Care: The Clients' Perspective.Journal of patient experience · 2025Article
- We Hope You're Listening: Qualitative Study of Advice Given by Individuals with Parkinson's Disease.Movement disorders clinical practice · 2024Article
- Quality of life and living with Parkinson's disease: a qualitative exploration within an Irish context.BMC neurology · 2024Article
- Experiences of Living With the Nonmotor Symptoms of Parkinson's Disease: A Photovoice Study.Health expectations : an international journal of public participation in health care and health policy · 2024Article
- Digital outcome measures from smartwatch data relate to non-motor features of Parkinson's disease.NPJ Parkinson's disease · 2024Article
- Ageing with Parkinson's: Identification of Personal Needs in the Northern Spanish Context.Healthcare (Basel, Switzerland) · 2024Article
- Patient Empowerment for Those Living with Parkinson's Disease.Journal of Parkinson's disease · 2024Review
- Article
- Rock Steady Boxing: A qualitative evaluation of a community exercise program for people with Parkinson's disease.PloS one · 2024Article
- Delivering Multidisciplinary Rehabilitation Care in Parkinson's Disease: An International Consensus Statement.Journal of Parkinson's disease · 2024Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
2 authors at 2 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Parkinson's disease is an incurable, progressive neurodegenerative disease. This condition is complicated by the varying symptoms in individuals who differ in age of onset, symptoms, progression of disease, response to treatment and prognosis. In this paper, we focus on quality of life achieved through a combination of comprehensive health care, continuous support, and self care. Determining what people with Parkinson's disease want is like assembling multiple puzzles simultaneously. While we surmise that patient centered care, support programs, access to comprehensive health care, and relevant symptom control are pieces of this puzzle, more longitudinal studies- which are observational in nature and correlate the impact of symptoms with patients' reported needs- are necessary.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.