SynthesisHealth expectations : an international journal of public participation in health care and health policy2020
Priorities of patients, caregivers and health-care professionals for health research - A systematic review.
Synthesis in Health expectations : an international journal of public participation in health care and health policy, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 20 papers, 2 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
20 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- Methodological procedures for priority setting mental health research: a systematic review summarising the methods, designs and frameworks involved with priority setting.Health research policy and systems · 2023Pooled it
- Priorities of patients, caregivers and health-care professionals for health research - A systematic review.Health expectations : an international journal of public participation in health care and health policy · 2020Pooled it
- Views on mental health research in the context of schizophrenia: perspectives of peer support workers and researchers with lived experience - a qualitative study.Research involvement and engagement · 2026Article
- From patient advocacy to patient-driven research: Building active partnerships beginning at the bench to reach the bedside.FEBS open bio · 2026Article
- What Matters Most: The Top 10 Child and Adolescent Cancer Research Priorities in Australia.Health expectations : an international journal of public participation in health care and health policy · 2026Article
- Approaches for community intervention and research priority setting to reduce health inequalities: a scoping review.Journal of public health (Oxford, England) · 2026Article
- Engaging Patient and Caregiver Partners in Codeveloping a Patient Educational Video for Improving Clostridioides difficile Infection Education: Participatory Co-Design Study.JMIR formative research · 2026Article
- [Patient participation in health research in Germany : Current status and future prospects].Bundesgesundheitsblatt, Gesundheitsforschung, Gesundheitsschutz · 2026Article
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- Overarching Priorities for Health and Care Research in the United Kingdom: A Coproduced Synthesis of James Lind Alliance 'Top 10s'.Health expectations : an international journal of public participation in health care and health policy · 2024Article
- [Need for Action and Research in Psychosomatic and Orthopaedic Rehabilitation from the Point of View of Rehabilitants and Individuals who work in Rehabilitative Care].Die Rehabilitation · 2023Article
- [Identification and Prioritization of Research Questions on Paraplegia Caused by Traumatic Spinal Cord Injury with Those Affected, Their Relatives and Health Care Professionals].Gesundheitswesen (Bundesverband der Arzte des Offentlichen Gesundheitsdienstes (Germany)) · 2023Article
- Comparing an in-person workshop and a postal Delphi survey for involving health service users in health care and health research prioritization.Health expectations : an international journal of public participation in health care and health policy · 2023Article
- Stakeholder identified research priorities for early intervention in psychosis.Health expectations : an international journal of public participation in health care and health policy · 2022Article
- How to co-design a health literacy-informed intervention based on a needs assessment study in chronic obstructive pulmonary disease.BMJ open · 2022Article
- Transitional care for patients with acute stroke-A priority-setting project.Health expectations : an international journal of public participation in health care and health policy · 2022Article
- Engaging veteran stakeholders to identify patient-centred research priorities for optimizing implementation of lung cancer screening.Health expectations : an international journal of public participation in health care and health policy · 2022Article
- What do end-users want to know about managing the performance of healthcare delivery systems? Co-designing a context-specific and practice-relevant research agenda.Health research policy and systems · 2021Review
- Top Ten Research Priorities for Psoriasis, Atopic Dermatitis and Hidradenitis Suppurativa: The SkIN Canada Priority Setting Initiative.Journal of cutaneous medicine and surgeryArticle
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
3 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundBased on subjective experience, patients can identify research priorities important for health services research. A systematic method for priority setting has been developed by the James Lind Alliance.
objectiveThis article reviews the literature on the research priorities of patients, caregivers and health-care professionals and presents the prioritized research themes and prioritization methods used. SEARCH STRATEGY: Three electronic databases were searched on 22 May 2018. The search was not limited to any time period or language. INCLUSION CRITERIA: The included studies reported the identification and prioritization of research priorities involving patients, relatives and caregivers. Each included paper addressed a specific ICD-coded health problem, and at least one-third of the sample involved in the prioritization process was affected by the health problem. DATA EXTRACTION AND SYNTHESIS: The 10 top-ranked research priorities were included in the thematic analysis. With an inductive approach, a system of identified themes and subthemes was developed from the research priorities. Each research priority was assigned to one research theme. MAIN
resultsThe priority lists of 34 publications involving 331 research priorities were included. Nine main themes represent the content of the research priorities. The most frequently represented main themes are 'Treatment', 'Patients' and 'Health condition'. The distribution of the research priorities varied depending on the health conditions and prioritization methods. DISCUSSION AND
conclusionsThis review provides a comprehensive overview of the overarching research themes in research priorities of affected individuals. The results can guide future patient-oriented research.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.