ArticlePediatric critical care medicine : a journal of the Society of Critical Care Medicine and the World Federation of Pediatric Intensive and Critical Care Societies2020
Fathers of Children With Congenital Heart Disease: Sources of Stress and Opportunities for Intervention.
Article in Pediatric critical care medicine : a journal of the Society of Critical Care Medicine and the World Federation of Pediatric Intensive and Critical Care Societies, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 21 papers, 1 of them a synthesis that pooled it.
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Who cites it
21 citing papers in PubMed, 1 synthesis or guideline pooled it, 32 citations in OpenAlex.
- Health-related quality of life and influencing factors in parents of children with congenital heart disease: a systematic review and meta-analysis.Frontiers in public health · 2025Pooled it
- Exploring the role of fathers' preoperative preparation in reducing anxiety and enhancing self-efficacy before pediatric open-heart surgery.BMC psychology · 2026Trial
- Longer-term experiences of families of children with dextro-transposition of the great arteries: a qualitative study.Pediatric research · 2026Article
- Update on Education for Families and Patients With Pediatric Heart Disease: A Focus on Technological Advancements, Procedures, and Transitions of Care: A Scientific Statement From the American Heart Association.Journal of the American Heart Association · 2026Review
- Review
- Development and validation of a questionnaire to measure the congenital heart disease of children's family stressor.Frontiers in public health · 2024Article
- The impact of early surgical ventricular septal defect repair on parenting behavior and mother-child relationship: a prospective longitudinal study.Frontiers in pediatrics · 2024Article
- An mHealth, patient engagement approach to understand and address parents' mental health and caregiving needs after prenatal diagnosis of critical congenital heart disease.PEC innovation · 2023Article
- Toxic Stress as a Potential Factor Inducing Negative Emotions in Parents of Newborns and Infants with Cyanotic Congenital Heart Disease.Children (Basel, Switzerland) · 2023Article
- Virtually Delivered Psychosocial Intervention for Prenatally Diagnosed Congenital Heart Disease: Feasibility and Acceptability of HEARTPrep.Pediatric cardiology · 2023Article
- Barriers and facilitators to discussing parent mental health within child health care: Perspectives of parents raising a child with congenital heart disease.Journal of child health care : for professionals working with children in the hospital and community · 2023Article
- Anxiety and Depression Levels in Parents after Counselling for Fetal Heart Disease.Journal of clinical medicine · 2023Article
- Life situation of a caregiver of a child with congenital heart defect and/or other cardiac problems: structure and preliminary validation of a new questionnaire.Frontiers in psychology · 2023Article
- Brain-Directed Care: Why Neuroscience Principles Direct PICU Management beyond the ABCs.Children (Basel, Switzerland) · 2022Review
- The Associations of Psychologic and Physiologic Manifestations of Parental Stress in Critical Congenital Heart Disease.Biological research for nursing · 2022Article
- Parental post-traumatic stress, overprotective parenting, and emotional and behavioural problems for children with critical congenital heart disease.Cardiology in the young · 2022Article
- Coping strategies used by mothers and fathers following diagnosis of congenital heart disease.Child: care, health and development · 2022Article
- Role alteration predicts anxiety and depressive symptoms in parents of infants with congenital heart disease: a pilot study.Cardiology in the young · 2021Article
- Parent mental health and family functioning following diagnosis of CHD: a research agenda and recommendations from the Cardiac Neurodevelopmental Outcome Collaborative.Cardiology in the young · 2021Article
- Topical Review: Crowdsourcing as a Novel Approach to Qualitative Research.Journal of pediatric psychology · 2021Article
Corrections and comments
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Authors and funding
10 authors at 3 institutions in 1 country.
Funding
Abstract
objectivesTo examine sources of stress for fathers of children with congenital heart disease and opportunities for intervention to prevent or reduce paternal mental health problems.
designQualitative study using online crowdsourcing, an innovative research methodology to create an online community to serve as a research sample.
settingYammer, an online social networking site. SUBJECTS: Geographically diverse sample of 70 parents (25 fathers and 45 mothers) of young children with congenital heart disease.
interventionsParticipants joined a private group on Yammer and responded to 37 open-ended study questions over a 6-month period. Qualitative data were coded and analyzed using an iterative process, and themes regarding sources of stress for fathers of children with congenital heart disease and opportunities for intervention were identified. MEASUREMENTS AND MAIN
resultsFour broad themes regarding sources of stress for fathers of children with congenital heart disease emerged from the qualitative data from both mothers and fathers: societal expectations for fatherhood and standards of masculinity, balancing work and family responsibilities, feeling overlooked as a partner in care, and lack of father supports. To begin to address these sources of stress, participants recommended that care teams acknowledge and normalize the impact of congenital heart disease on fathers, provide support for balancing work and family responsibilities, recognize and promote father knowledge and engagement, and provide formal and informal supports for fathers of children with congential heart disease.
conclusionsFathers of children with congenital heart disease experience unique sources of stress in the absence of targeted interventions to meet their needs. Care teams play an important role in acknowledging the experiences of fathers and including and engaging fathers in care.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.