ArticleAIDS and behavior2021
Disclosure, Social Support, and Mental Health are Modifiable Factors Affecting Engagement in Care of Perinatally-HIV Infected Adolescents: A Qualitative Dyadic Analysis.
Article in AIDS and behavior, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 19 papers, 1 of them a synthesis that pooled it.
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Who cites it
19 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Impact of HIV-Related Stigma on Antiretroviral Therapy Adherence, Engagement and Retention in HIV Care, and Transition to Adult HIV Care in Pediatric and Young Adult Populations Living With HIV: A Literature Review.AIDS and behavior · 2025Pooled it
- Interactive Transition Support for Adolescents Living with HIV Comparing Virtual and In-person delivery (InTSHA VIP): a stepped-wedge, cluster-randomised trial in South Africa.BMC health services research · 2026Trial
- Trial
- "I am not shy anymore": A qualitative study of the role of an interactive mHealth intervention on sexual health knowledge, attitudes, and behaviors of South African adolescents with perinatal HIV.Reproductive health · 2022Trial
- Healthcare Transition From Pediatric to Adult Care Among Youth Living With HIV in South Carolina: Retrospective Study From 2005 to 2021.The Journal of adolescent health : official publication of the Society for Adolescent Medicine · 2026Article
- Cultural adaptation of clinic-based pediatric hiv status disclosure intervention with task shifting in Eastern Uganda.AIDS research and therapy · 2025Article
- Transition to Adult Care for Young People Living with HIV.Current HIV/AIDS reports · 2025Review
- Article
- HIV disclosure in the social networks of adolescents with HIV in Cape Town, South Africa.Frontiers in reproductive health · 2025Article
- The multisystemic roots of South African child and youth resilience: A scoping review.PloS one · 2025Article
- Mixed Methods Evaluation of a Youth-Friendly Clinic for Young People Living with HIV Transitioning from Pediatric Care.Tropical medicine and infectious disease · 2024Article
- Social support experiences of adolescents living with perinatal HIV in rural Limpopo, South Africa.Southern African journal of HIV medicine · 2024Article
- Creating a data collection and management platform to support measurement of adolescent HIV care transition processes within low- and middle-income countries: The GRADUATE project.PLOS global public health · 2024Article
- A qualitative analysis of self-management needs of adolescents and young adults living with perinatally acquired HIV in rural, southwestern Uganda.PLOS global public health · 2024Article
- Qualitative Study on the Voices of Adolescents Living with Perinatally Acquired HIV in Selected Clinics in the Limpopo Province of South Africa.Children (Basel, Switzerland) · 2023Article
- Exploring the determinants of health service utilization among people living with HIV: a qualitative study in Iran.BMC health services research · 2023Article
- Psychosocial Support Programme Improves Adherence and Health Systems Experiences for Adolescents on Antiretroviral Therapy in Mpumalanga Province, South Africa.International journal of environmental research and public health · 2022Article
- Development of a transition readiness score for adolescents living with perinatally-acquired HIV and transitioning to adult care.AIDS and behavior · 2022Article
- Development and validation of the HIV adolescent readiness for transition scale (HARTS) in South Africa.Journal of the International AIDS Society · 2021Article
Corrections and comments
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Authors and funding
6 authors.
Funding
Abstract
Adolescents living with perinatally acquired HIV in South Africa face significant barriers to successful transition from pediatric to adult care. We performed in-depth qualitative interviews with 41 adolescents living with HIV and 18 of their caregivers to investigate modifiable factors to improve engagement in care prior to transition to adult care. Based on dyadic, inductive content analysis, findings suggest that HIV status disclosure, social support, and mental health are targets for improvement in engagement in care. Early disclosure and a sense of belonging facilitated engagement in care, while barriers included delayed or inadequate disclosure, denial, and lack of disclosure to others. Adherence support improved by having a biological mother as a direct supervisor. Barriers to care included changing caregivers, abandonment, undiagnosed mental health problems and learning difficulties. Despite these factors, the majority of adolescents showed resilience and remained engaged in care despite difficult circumstances.
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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.