Observational studyBMC palliative care2020
Factors affecting quality of end-of-life hospital care - a qualitative analysis of free text comments from the i-CODE survey in Norway.
Observational study in BMC palliative care, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT03566732 (International Care Of the Dying Evaluation), which is not on this map. Cited by 9 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
International Care Of the Dying Evaluation (CODE): Quality of Care for Cancer Patients as Perceived by Bereaved Relatives
Who cites it
9 citing papers in PubMed.
- "Life still has meaning for me!" Exploring sources of meaningful life among palliative care patients: a qualitative study.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2026Article
- Translation and validation of the Portuguese version of the "Care of the Dying Evaluation".Revista da Associacao Medica Brasileira (1992) · 2026Observational
- Perceived health related quality of life among cancer patients based on insights from Kamuzu central hospital patients, caregivers and staff.Scientific reports · 2025Article
- Aesthetic experiences of patients with advanced cancer in end-of-life care in China: A phenomenological study.Belitung nursing journal · 2025Article
- Stretching oneself too thin and facing ethical challenges: Healthcare professionals' experiences during the COVID-19 pandemic.Nursing ethics · 2024Article
- Providing End-of-Life Care to COVID-19 Patients: The Lived Experiences of ICU Nurses in the Philippines.International journal of environmental research and public health · 2022Article
- Palliative Oncological Patients with Insomnia: Concerns of the Patients and Their Relatives' Perception.International journal of environmental research and public health · 2021Article
- "It's given me confidence": a pragmatic qualitative evaluation exploring the perceived benefits of online end-of-life education on clinical care.BMC palliative care · 2021Article
- Patient Experiences and Information Needs in Palliative Care: A Qualitative Descriptive Study.Indian journal of palliative careArticle
Corrections and comments
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Authors and funding
7 authors.
Funding
Abstract
backgroundThe ERANet-LAC CODE (Care Of the Dying Evaluation) international survey assessed quality of care for dying cancer patients in seven countries, by use of the i-CODE questionnaire completed by bereaved relatives. The aim of this sub study was to explore which factors improve or reduce quality of end-of-life (EOL) care from Norwegian relatives' point of view, as expressed in free text comments.
methods194 relatives of cancer patients dying in seven Norwegian hospitals completed the i-CODE questionnaire 6-8 weeks after bereavement; recruitment period 14 months; response rate 58%. Responders were similar to non-responders in terms of demographic details.104 participants (58% spouse/partner) added free text comments, which were analyzed by systematic text condensation.
resultsOf the 104 comments, 45% contained negative descriptions, 27% positive and 23% mixed. 78% described previous experiences, whereas 22% alluded to the last 2 days of life. 64% of the comments represented medical/surgical/oncological wards and 36% palliative care units. Four main categories were developed from the free text comments: 1) Participants described how attentive care towards the practical needs of patients and relatives promoted dignity at the end of life, which could easily be lost when this awareness was missing. 2) They experienced that lack of staff, care continuity, professional competence or healthcare service coordination caused uncertainty and poor symptom alleviation. 3) Inadequate information to patient and family members generated unpredictable and distressing final illness trajectories. 4) Availability and professional support from healthcare providers created safety and enhanced coping in a difficult situation.
conclusionsOur findings suggest that hospitals caring for cancer patients at the end of life and their relatives, should systematically identify and attend to practical needs, as well as address important organizational issues. Education of staff members ought to emphasize how professional conduct and communication fundamentally affect patient care and relatives' coping.
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