ArticleSouth African family practice : official journal of the South African Academy of Family Practice/Primary Care2020
Burden of caring for children living with human immunodeficiency virus in a semi-rural South African community.
Article in South African family practice : official journal of the South African Academy of Family Practice/Primary Care, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. An erratum has been issued. Cited by 1 paper.
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- Caregiver burden experienced by mothers of infants who are HIV exposed uninfected compared to infants HIV unexposed: A prospective cohort study in Worcester, South Africa.Journal of tropical pediatrics · 2026Article
Corrections and comments
- Erratum issued
Authors and funding
2 authors at 1 institution in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundCaregiver burden influences the well-being of children living with human immunodeficiency virus (HIV) who may experience disabilities as a result of the virus, comorbidities and treatment. Overall health, psychological well-being, finances, social life and the relationship with the child being cared for influence the burden of care. This study aimed to investigate the burden of care on caregivers of children living with HIV who may be experiencing disabilities.
methodsAn analytical cross-sectional survey using the Zarit Burden questionnaire was conducted with caregivers of children living with HIV who were accessing care from a semi-rural healthcare setting between May and August 2019. A socio-demographic survey supplemented the Zarit Burden instrument. Descriptive statistics were used to determine burden of care and associations between the demographic profile variables of caregivers and the burden of care, with significance set as p 0.05.
resultsThirty-eight caregivers completed the survey. Although 44.7% reported no burden of care, 36.8% reported mild-to-moderate burden and 18.4% moderate-to-severe burden of caring for children living with HIV. The only significant association was between caregiver health status and burden of care (p = 0.034).
conclusionAlthough the burden of care in caregivers ranged between mild to severe and was directly associated with the caregiver's health status, the findings of this study highlight a need to assess caregiver burden in all caregivers of children living with HIV so that appropriate referral to professionals for counselling and support can be initiated. Because caregiver burden affects the care offered to children, professionals need to integrate their well-being into healthcare.
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