ArticleBrain and behavior2020
Adults with spina bifida: A cross-sectional study of health issues and living conditions.
Article in Brain and behavior, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 20 papers, 2 of them syntheses that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
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Who cites it
20 citing papers in PubMed, 2 syntheses or guidelines pooled it, 37 citations in OpenAlex.
- Evidence-based position paper of the UEMS PRM on the role of Physical and Rehabilitation Medicine (PRM) physician in the management of children and adults with spinal dysraphism.European journal of physical and rehabilitation medicine · 2022Pooled it
- Orthopedic management of myelomeningocele with a multidisciplinary approach: a systematic review of the literature.Journal of orthopaedic surgery and research · 2021Pooled it
- The association of daily urinary and bowel incontinence with emotional functioning in young adults with spina bifida: an ecological momentary assessment study.Journal of rehabilitation medicine · 2026Article
- Pain assessment in non-verbal children with neurocognitive impairment: a review on current tools, challenges, and clinical perspectives.Frontiers in pain research (Lausanne, Switzerland) · 2026Review
- Article
- Changes and Needs Experienced by People Aging With Spina Bifida and Hydrocephalus.The Gerontologist · 2025Article
- Memory in Spina Bifida, from Childhood to Adulthood: A Systematic Review.Journal of clinical medicine · 2024Review
- Cognition and emotional distress in middle-aged and older adults with spina bifida myelomeningocele.PloS one · 2024Article
- Psychosocial needs and outcomes of adults with spina bifida: A scoping review, 1974-2023.Health care transitions · 2024Article
- Myelomeningocele: the evolution of care over the last 50 years.Child's nervous system : ChNS : official journal of the International Society for Pediatric Neurosurgery · 2023Review
- Physical function and activity, pain, and health status in adults with myelomeningocele after orthotic management from childhood: a descriptive study.BMC musculoskeletal disorders · 2023Article
- Pregnancy in spina bifida patients: a comparative analysis of peripartum procedures and complications.Child's nervous system : ChNS : official journal of the International Society for Pediatric Neurosurgery · 2023Article
- Factors affecting the transition to adulthood of Korean young adults with spina bifida: a qualitative study.BMC nursing · 2023Article
- Impairments and comorbidities in adults with cerebral palsy and spina bifida: a meta-analysis.Frontiers in neurology · 2023Review
- Adults with spina bifida: ambulatory performance and cognitive capacity in relation to muscle function.Spinal cord · 2022Article
- Cognitive function and performance of everyday activities in adults with spina bifida.Journal of rehabilitation medicine · 2021Article
- Evaluation of Pain in Adults With Childhood-Onset Disabilities and Communication Difficulties.Frontiers in neurology · 2021Review
- Views on everyday life among adults with spina bifida: an exploration through photovoice.International journal of qualitative studies on health and well-being · 2020Article
- Cognitive challenges in persons with spina bifida: Bearing on urological dysfunctions?Neurourology and urodynamics · 2020Article
- Adults with spina bifida: A cross-sectional study of health issues and living conditions.Brain and behavior · 2020Article
Corrections and comments
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Authors and funding
8 authors at 3 institutions in 1 country.
Funding
Abstract
objectiveTo describe health issues and living conditions in a cohort of adults living with Spina bifida. MATERIAL AND
methodsA cross-sectional study was conducted by a multidisciplinary team. Adults with spina bifida (n = 219) were invited to participate. One-hundred-and-ninety-six persons (104 women and 92 men; 18-73 years, median age 33 years) were included. Structured interviews, questionnaires, and clinical assessments for medical, social, physical, and cognitive functions were used.
resultsThere was large variation among participants as regards the consequences of their spina bifida. Individuals < 46 years seemed to have more secondary conditions such as hydrocephalus, Chiari II malformation, tethered cord symptoms, and latex allergy. A higher proportion of the individuals >46 years and older was able to walk, and they had performed better in primary school and on tests of psychomotor speed and executive function.
conclusionsThis study demonstrates that adults with spina bifida have a complex set of physical, cognitive, and social needs that need to be addressed in order to improve their health issues and living conditions. The high prevalence of urinary and fecal incontinence, pain, and overweight underline that these issues need much attention during follow-up. The future generations of older adults may need more attention in many ways, since they at a younger age do have more complex medical conditions, lower physical and cognitive functions, and lower prerequisites for independent living and participation in society than those > 46 years today. This elucidates that adults with spina bifida need systematic follow-up services and social support throughout life.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.