ArticleSupportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer2021
Supportive care needs and service use during palliative care in family caregivers of patients with advanced cancer: a prospective longitudinal study.
Article in Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 35 papers, 1 of them a synthesis that pooled it.
What it found
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Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
35 citing papers in PubMed, 1 synthesis or guideline pooled it, 84 citations in OpenAlex.
- Decision-making in palliative care: patient and family caregiver concordance and discordance-systematic review and narrative synthesis.BMJ supportive & palliative care · 2023Pooled it
- Psychosocial Burden and Supportive Care Needs of Informal Caregivers in Specialist Palliative Care: Protocol of a Multicenter Longitudinal Cohort Study to Identify Trajectories and Validate the Multidimensional Screening Tool CAREPAL-8.JMIR research protocols · 2026Article
- Evaluating an AI-Enabled Mobile Mental Health Monitoring Tool Among Family Caregivers of Adults Living With Cancer: Single-Arm Feasibility and Acceptability Trial Protocol.JMIR research protocols · 2026Article
- A nature-based intervention for bereaved friend and family cancer caregivers: a study protocol.Frontiers in public health · 2026Article
- Article
- Family caregivers' needs at 6 months after pancreatic cancer surgery: A latent profile analysis.International journal of nursing studies advances · 2025Article
- Comprehensive care needs among informal cancer caregivers of patients with advanced cancer in palliative care: a cross-sectional study.Scientific reports · 2025Article
- Psychological distress, quality of life, needs, and resources among informal caregivers in specialist palliative home care.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2025Article
- Family Members' Psychosocial Support in Palliative Inpatient Care: A Cross-Sectional Study.Journal of family nursing · 2025Article
- Psychological Resilience, Symptom Burden, and Supportive Care Needs in Chemotherapy Patients: A Path Analysis.Brain and behavior · 2025Article
- The needs of the family caregivers of patients with end-stage chronic obstructive pulmonary disease: a qualitative study in Iran.BMC nursing · 2025Article
- Reducing Caregiver Burden Through Dyadic Support in Palliative Care: A Systematic Review Focused on Middle-Aged and Older Adults.Journal of clinical medicine · 2025Review
- The caregiver's journey: A qualitative study on the integration of family caregivers of advanced cancer patients in outpatient settings in Germany.Palliative & supportive care · 2025Article
- Qualitative study of spousal emotional experiences of taking care of dying patients.BMC nursing · 2025Article
- Failed implementation of a nursing intervention to support family caregivers: An evaluation study using Normalization Process Theory.Journal of advanced nursing · 2025Article
- Exploring the lived experience of Chinese family caregivers caring for end-of-life cancer patients at home: a phenomenological study in Singapore.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2025Article
- The experience of hope in dyads living with advanced chronic illness in Portugal: a longitudinal mixed-methods study.BMC palliative care · 2024Article
- The CAREPAL-8: a short screening tool for multidimensional family caregiver burden in palliative care.BMC palliative care · 2024Article
- Challenges and coping strategies when caring for terminally ill persons with cancer: perspectives of family caregivers.BMC palliative care · 2024Article
- Article
Corrections and comments
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Authors and funding
11 authors at 2 institutions in 1 country.
Funding
Abstract
purposeThis study aimed to investigate the supportive care needs of family caregivers (FCs) of advanced cancer patients and their support service use at the beginning of specialist inpatient palliative care (SIPC), near the patient's death, and during bereavement.
methodsFCs reported their needs using the Family Inventory of Needs (FIN), along with their utilization of psychosocial and bereavement support services at the beginning (N = 232) and 6-9 months after SIPC (N = 160).
resultsAt the beginning of SIPC, mean of 16.9 of 20 needs were reported to be highly important, and 12.2 were reported to be met. At the time of the patient's death, 16.8 needs were highly important, and 13.8 were met. At both time points, the highest ranked need was related to information about changes in the patient's condition (100% vs. 99%), and the most frequently unmet need was related to feeling hope (73% vs. 71%). Multivariate linear regression analysis revealed a low education level to be consistently related to a greater number of highly important needs. Higher satisfaction with care and better social support was related to a greater number of met needs. Twenty-five percent of FCs had accessed at least one psychosocial support service prior to SIPC, and 30% had done so during bereavement. Among non-users of support services, > 75% indicated sufficient informal support as a barrier to service use.
conclusionsThe findings offer a useful guide for adequately addressing FCs' needs in an effort to optimize FC support. However, only a subgroup of the FCs used support services. Better information and provision of tailored services might improve FCs' situations in the future.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.