Evidence map›Paper›PMID 32628434›Full record

ArticleTurkish journal of medical sciences2020

Cross-sectional study: long term follow-up care for pediatric cancer survivors in a developing country, Turkey: current status, challenges, and future perspectives

Sonay İncesoy Özdemİr, Nurdan Taçyıldız, Alİ Varan, Rejİn Kebudi, Osman Bülent Zülfikar, Tülin Tiraje Celkan, Gürses Şahin, Funda Vesile Çorapcıoğlu, Zuhal Keskin Yıldırım, Faruk Güçlü Pınarlı and 15 more

Abstract read
In one paragraph

Article in Turkish journal of medical sciences, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 4 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
4citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

4 citing papers in PubMed, 1 synthesis or guideline pooled it.

  1. Pooled it
  2. Article
  3. Review
  4. Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

25 authors.

Sonay İncesoy ÖzdemİrDepartment of Pediatric Oncology, Faculty of Medicine, Ankara Yıldırım Beyazıt University, Ankara, TurkeyORCID 0000-0003-2863-901X
Nurdan TaçyıldızDepartment of Pediatric Oncology, Faculty of Medicine, Ankara University, Ankara, TurkeyORCID 0000-0001-5573-4659
Alİ VaranDepartment of Pediatric Oncology, Faculty of Medicine, Hacettepe University, Ankara, TurkeyORCID 0000-0003-4911-1476
Rejİn KebudiInstitute of Oncology, İstanbul University, İstanbul, TurkeyORCID 0000-0003-4344-8174
Osman Bülent ZülfikarInstitute of Oncology, İstanbul University, İstanbul, TurkeyORCID 0000-0002-7586-6939
Tülin Tiraje CelkanDepartment of Pediatric Hematology Oncology, Faculty of Medicine, İstanbul University, İstanbul, TurkeORCID 0000-0001-7287-1276
Gürses ŞahinDepartment of Pediatric Oncology, Dr. Sami Ulus Children’s Hospital, Ankara, TurkeyORCID 0000-0003-0959-1655
Funda Vesile ÇorapcıoğluDepartment of Pediatric Oncology, Faculty of Medicine, Kocaeli University, Kocaeli, TurkeyORCID 0000-0003-3514-084X
Zuhal Keskin YıldırımDepartment of Pediatric Oncology, Faculty of Medicine, Atatürk University, Erzurum, TurkeyORCID 0000-0001-8689-4014
Faruk Güçlü PınarlıDepartment of Pediatric Oncology, Faculty of Medicine, Ankara Yıldırım Beyazıt University, Ankara, TurkeyORCID 0000-0002-3241-2478
Hatice Nur OlgunDepartment of Pediatric Oncology, Faculty of Medicine, Dokuz Eylül University, İzmir, TurkeyORCID 0000-0001-9591-0207
Neriman SarıDepartment of Pediatric Oncology, Dr. Abdurrahman Yurtaslan Oncology Training and Research Hospital, Ankara, TurkeyORCID 0000-0001-5723-1385
Ayhan DağdemirDepartment of Pediatric Oncology, Faculty of Medicine, Ondokuz Mayıs University, Samsun, TurkeyORCID 0000-0002-9707-9477
Derya ÖzyörükDepartment of Pediatric Oncology, Ankara Children’s Hematology and Oncology Training and Research Hospital, Ankara, TurkeyORCID 0000-0002-3396-2463
Tuba ErenDepartment of Pediatric Oncology, Faculty of Medicine, Trakya University, Edirne, TurkeyORCID 0000-0001-5471-0663
Fatma Betül ÇakırDepartment of Pediatric Hematology Oncology, Faculty of Medicine, Bezmiâlem Vakıf University, İstanbul, TurkeyORCID 0000-0001-9581-8128
Başak Adaklı AksoyDepartment of Pediatric Hematology Oncology, Faculty of Medicine, Medeniyet University, İstanbul, TurkeyORCID 0000-0001-8338-2101
Ceyhun BozkurtDepartment of Pediatric Hematology Oncology, Faculty of Medicine, Istinye University, Bahçelievler Medikal Park Hospital, İstanbul, TurkeyORCID 0000-0001-6771-9894
Elif GülerDepartment of Pediatric Oncology, Faculty of Medicine, Akdeniz University, Antalya, TurkeyORCID 0000-0001-8072-2561
Ali Aykan ÖzgüvenDepartment of Pediatric Oncology, Faculty of Medicine, Celal Bayar University, Manisa, TurkeyORCID 0000-0002-6845-2017
Mehmet Fatih ErbeyDepartment of Pediatric Hematology Oncology, Faculty of Medicine, Koç University, Ankara, TurkeyORCID 0000-0002-4475-0407
Melda Berber HamamciDepartment of Pediatric Oncology, Faculty of Medicine, Ankara University, Ankara, TurkeyORCID 0000-0001-6875-5766
Handan DinçaslanDepartment of Pediatric Oncology, Faculty of Medicine, Ankara University, Ankara, TurkeyORCID 0000-0002-1015-6784
Emel ÜnalDepartment of Pediatric Oncology, Faculty of Medicine, Ankara University, Ankara, TurkeyORCID 0000-0001-5847-4733
Mehmet KantarDepartment of Pediatric Oncology, Faculty of Medicine, Ege University, İzmir, TurkeyORCID 0000-0002-1669-4321

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Aim: The main purpose of this study is to determine the current status of long-term follow-up (LTFU) for childhood cancer survivors and the challenges of LTFU for pediatric cancer survivors at pediatric oncology institutions in Turkey. Material and methods: A questionnaire was e-mailed to the directors of 33 pediatric oncology centers (POCs) registered in the Turkish Pediatric Oncology Group (TPOG). Of these 33 active TPOG institutions, 21 participated in the study and returned their completed questionnaires. Results: Only 1 of the 21 participating centers had a separate LTFU clinic. The remaining centers provided LTFU care for childhood cancer survivors at the pediatric oncology outpatient clinic. Of these centers, 17 (80.9%) reported difficulty in transition from the pediatric clinic to the adult clinic, 14 (66.6%) reported insufficient care providers, and 12 (57.1%) reported insufficient time and transportation problems. As neglected late effects, 16 (76.1%) centers reported psychosocial and getty job problems and 11 (52.3%) reported sexual and cognitive problems. None of the centers had their own LTFU guidelines for their daily LTFU practice Conclusion: This study was the first to gain an overview of the needs of POCs and the gaps in survivorship services in Turkey. The results from this study will help to develop a national health care system and national guidelines for pediatric cancer survivors.

Indexed as

Developing CountriesAftercareCancer SurvivorsChildCross-Sectional StudiesHumansPediatricsSurveys and QuestionnairesTransition to Adult CareTurkeyLong term follow-uppediatric oncologysurvivorshipTurkey

Identifiers

PMID32628434
PMCPMC7775715

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.