Evidence map›Paper›PMID 32621269›Full record

SynthesisAging clinical and experimental research2021

Physical activity for people living with dementia: carer outcomes and side effects from the perspectives of professionals and family carers.

Ana-Carolina Gonçalves, Sara Demain, Dinesh Samuel, Alda Marques

Registry-linked trialAbstract readSystematic Review
In one paragraph

Synthesis in Aging clinical and experimental research, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT06264362 (Developing a Nonpharmacological Pain Intervention for Community-dwelling Older Adults With Dementia), which is not on this map. Cited by 6 papers.

0numbers the graph read from it
0cells of the map it votes in
6citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT06264362 nanot yet recruitingnot on this mapstarted 2025, after this paper: background citation

Developing a Nonpharmacological Pain Intervention for Community-dwelling Older Adults With Dementia

TypeinterventionalSponsorDrexel UniversityRan2025 to 2027Enrolled40ConditionsPain, Chronic, Dementia, Mild, Mobility Limitation, Physical DisabilityArmsTailored Physical Activity Program
3 · Its place in the literature

Who cites it

6 citing papers in PubMed.

  1. Trial
  2. Nursing reports (Pavia, Italy) · 2024
    Article
  3. Article
  4. Article
  5. Article
  6. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

4 authors.

Ana-Carolina GonçalvesSchool of Health Sciences, Faculty of Environmental and Life Sciences, University of Southampton, Southampton, UK.ORCID http://orcid.org/0000-0003-4055-0894
Sara DemainSchool of Health Professions, Peninsula Allied Health Centre, University of Plymouth, Plymouth, UK.
Dinesh SamuelSchool of Health Sciences, Faculty of Environmental and Life Sciences, University of Southampton, Southampton, UK.
Alda MarquesRespiratory Research and Rehabilitation Laboratory (Lab3R), School of Health Sciences (ESSUA) and Institute for Research in Biomedicine (iBiMED), University of Aveiro, Agras do Crasto, Campus Universitário de Santiago, Building 30, 3810-193, Aveiro, Portugal. amarques@ua.pt.

Funding

Fundação para a Ciência e Tecnologia UID/BIM/04501/2013 and POCI-01-0145-FEDER-007628- iBiMEDUniversity of Southampton and Solent NHS Trust Clinical Doctoral Research Fellowship
6 · The paper itself

Abstract

backgroundAdherence to physical activity is challenging for people living with dementia, and largely dependent on carers' involvement. Carers are likely to support physical activity based on their perceived balance between benefits and potential side effects of such intervention for both patients and themselves. Professionals also have a role in terms of optimising such interventions not only for people with dementia but also their carers.

aimsThe present study aimed to identify the priorities of carers and professionals regarding (1) outcomes of physical activity for people living with dementia on carers and (2) side effects on patients and carers.

methodsThis was a two-round prioritisation exercise. In round one, participants were asked to rank, from most to least important, 2 lists of outcomes generated in a previous systematic review and qualitative study: (i) 10 outcomes on carers; (ii) 17 side effects on patients and carers. In round two, participants were asked to consider their own ranking in round one against the overall group ranking and re-rank both lists.

results36 carers and 39 professionals completed both rounds. The carer outcomes ranked as highest priority were "carer feeling positive and satisfied", "carer improving wellbeing" and "making lives of carers easier". The most undesirable side effects were "becoming agitated and confused", "falling over" and "feeling discomfort and pain". DISCUSSION AND

conclusionsCarers and professionals value the potential reduction in carer burden that may occur as a consequence of the person with dementia engaging in physical activity. Behavioural and psychological symptoms, falls and pain are the most undesirable side effects of physical activity. Future research should aim to address, and consistently report on these outcomes.

Indexed as

CaregiversDementiaAnxietyEmotionsExerciseHumansAdherenceCaregiversDementiaPhysical activitySide effects

Identifiers

PMID32621269
PMCPMC8081678

What OpenQuestion holds

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LicenceCC BY
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Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.