ArticleQualitative health research2020
Family Sense-Making After a Down Syndrome Diagnosis.
Article in Qualitative health research, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 16 papers, 1 of them a synthesis that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
16 citing papers in PubMed, 1 synthesis or guideline pooled it, 32 citations in OpenAlex.
- Systematic review of measures and interventions for caregiver adjustment to child autism diagnosis.Autism : the international journal of research and practice · 2026Pooled it
- A pilot randomised controlled trial on the effectiveness of infant massage on the acceptance, commitment and awareness of influence in parents of babies with Down syndrome.Journal of intellectual disability research : JIDR · 2023Trial
- Discomfort in the Unexpected: A Mixed-Methods Study on Australian Clinicians' Experiences of Explaining Prenatal Screening Results.The Australian & New Zealand journal of obstetrics & gynaecology · 2026Article
- Down syndrome birth rate post Dobbs decision: has it changed?Journal of perinatology : official journal of the California Perinatal Association · 2026Article
- Down Syndrome in British Maternity Care: Mothers' Experiences of Prenatal Testing and Receiving a Prenatal or Postnatal Diagnosis.Journal of applied research in intellectual disabilities : JARID · 2025Article
- Your baby has down syndrome: a reflexive thematic analysis of breaking the news to parents.BMC pregnancy and childbirth · 2025Article
- Understanding the complexity of decision-making for mothers of young children with ambulatory cerebral palsy: A qualitative phenomenological study.Developmental medicine and child neurology · 2025Article
- Mothers' reflections on the diagnosis and birth of their child with Down syndrome: Variability based on the timing of the diagnosis.Journal of genetic counseling · 2025Article
- Whispers of Resilience: A phenomenological exploration of maternal journeys with children affected by Downs Syndrome in Quetta, Baluchistan.Pakistan journal of medical sciences · 2025Article
- Perception of four intellectual and developmental disabilities based on search engine and news portrayal.PloS one · 2025Article
- Article
- Adaptation at the Family Level in Families of Individuals With Down Syndrome: A Scoping Review.Journal of family nursing · 2023Article
- Understanding Information Needs and Barriers to Accessing Health Information Across All Stages of Pregnancy: Systematic Review.JMIR pediatrics and parenting · 2022Review
- This Is My Baby Interview: An Adaptation to the Spanish Language and Culture.Children (Basel, Switzerland) · 2022Article
- Using ethnodrama to support parents in sense-making after prenatal or neonatal diagnosis of a child's disabling condition.Journal of applied research in intellectual disabilities : JARID · 2022Article
- "Concurrent Ropes and Ladders": Mapping and Conceptualizing the Emotional Loss Experience of Parents Following Pediatric Acquired Brain Injury.Qualitative health research · 2021Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
6 authors at 4 institutions in 1 country.
Funding
Abstract
The script of parenting shifts when parents learn of their child's Down syndrome diagnosis. To build a theory of the diagnostic experience and early family sense-making process, we interviewed 33 parents and nine grandparents living in the United States who learned prenatally or neonatally of their child's diagnosis. The core category of
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.