ArticleNeuro-oncology practice2020
Unmet needs and recommendations to improve meningioma care through patient, partner, and health care provider input: a mixed-method study.
Article in Neuro-oncology practice, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 10 papers, 1 of them a synthesis that pooled it.
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Who cites it
10 citing papers in PubMed, 1 synthesis or guideline pooled it, 15 citations in OpenAlex.
- The immaturity of patient engagement in value-based healthcare-A systematic review.Frontiers in public health · 2023Pooled it
- Article
- The experience of caregiving for adults with benign brain tumors: An integrative review.Neuro-oncology practice · 2024Review
- Long-term neurocognitive and psychological outcomes in meningioma survivors: Individual changes over time and radiation dosimetry.Neuro-oncology practice · 2024Article
- Article
- Unmet needs and wish for support of family caregivers of primary brain tumor patients.Neuro-oncology practice · 2023Article
- Shared decision-making in neurosurgery: a scoping review.Acta neurochirurgica · 2021Article
- Long-term health-related quality of life in meningioma survivors: A mixed-methods systematic review.Neuro-oncology advancesArticle
- The long-term caregiver burden in World Health Organization grade I and II meningioma: It is not just the patient.Neuro-oncology advancesArticle
- Long-term psychological and neurological outcomes among people with a history of non-malignant meningioma in the UK Biobank cohort.Neuro-oncology advancesArticle
Corrections and comments
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Authors and funding
9 authors at 2 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundIt has been suggested that lack of ongoing registration of patient-centered outcomes has resulted in existing care trajectories that have not been optimized for sequelae experienced by meningioma patients. This study aimed to evaluate the structure of current meningioma care and identify issues and potential high-impact improvement initiatives.
methodsUsing the grounded theory approach, a thematic framework was constructed based on the Dutch Comprehensive Cancer Organisation survey about issues in meningioma care trajectories. This framework was used during 3 semistructured interviews and 2 focus groups with patient-partner dyads (n = 16 participants), and 2 focus groups with health care providers (n = 11 participants) to assess issues in current meningioma care trajectories and possible solutions, including barriers to and facilitators for implementation.
resultsIdentified issues (n = 18 issues) were categorized into 3 themes: availability and provision of information, care and support, and screening for (neurocognitive) rehabilitation. A lack of information about the intervention and possible outcomes or complications, lack of support after treatment focusing on bodily and psychological functions, and reintegration into society were considered most important. Sixteen solutions were suggested, such as appointment of case managers (solution for 11/18 issues, 61%), assessment and treatment by physiatrists (22%), and routine use of patient-reported outcome measures for patient monitoring (17%). Barriers for these solutions were lack of budget, capacity, technology infrastructure, and qualified personnel with knowledge about issues experienced by meningioma patients.
conclusionsThis study identified issues in current multidisciplinary meningioma care that are considered unmet needs by patients, partners, and health care providers and could guide innovation of care.
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