ArticleJournal of cancer survivorship : research and practice2021
Facing the unknown: uncertain fertility in young adult survivors of childhood cancer.
Article in Journal of cancer survivorship : research and practice, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 24 papers, 3 of them syntheses that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
24 citing papers in PubMed, 3 syntheses or guidelines pooled it, 42 citations in OpenAlex.
- Fertility-Related Concerns in Survivors of Childhood Cancer: A Systematic Review.Cancer medicine · 2025Pooled it
- Psychosocial experiences regarding potential fertility loss and pregnancy failure after treatment in cancer survivors of reproductive age to identify psychosocial care needs: a systematic review.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2024Pooled it
- The experiences of reproductive concerns in cancer survivors: A systematic review and meta-synthesis of qualitative studies.Cancer medicine · 2023Pooled it
- Fertility Information Perceptions and Needs of People with Cancer, Their Family Members, and Caregivers.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2025Article
- Artificial Reproductive Technology Use and Family-Building Experiences of Female Adult Childhood Cancer Survivors: A Qualitative Study.Current oncology (Toronto, Ont.) · 2025Article
- 'Nobody Has Ever Spoken to Me About PCD and Fertility Issues': Fertility Experiences of People With Primary Ciliary Dyskinesia and Their Family Caregivers.Health expectations : an international journal of public participation in health care and health policy · 2025Article
- Inequalities in Fertility-Impacting Cancer Incidence Among Young Populations in the United States.Cancer medicine · 2025Article
- Self-disclosure and reproductive concerns among breast cancer female patients: the chain mediation model of couples' cancer-related communication problems and relationship intimacy.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2025Article
- Unmet Reproductive Health Care Information Needs of Female Young Adult Survivors of Childhood Cancer: Oncology Providers' Perspectives.Journal of adolescent and young adult oncology · 2025Article
- Identifying concerns and needs in AYA survivors of pediatric cancer: a scoping review.Frontiers in psychology · 2025Review
- Fertility-Related Concerns in Long-Term Survivors of Childhood Cancer: A Canadian Cohort Study.Current oncology (Toronto, Ont.) · 2024Article
- Positive and negative survivor-specific psychosocial consequences of childhood cancer: the DCCSS-LATER 2 psycho-oncology study.Journal of cancer survivorship : research and practice · 2024Article
- Websites about, not for, adolescents? A systematic analysis of online fertility preservation information for adolescent and young adult cancer patients.Journal of cancer survivorship : research and practice · 2024Article
- Article
- Contraceptive methods and fertility testing in young adult survivors of childhood cancer.Journal of assisted reproduction and genetics · 2023Article
- The Lived Experience of Young Adult Cancer Survivors after Treatment: A Qualitative Study.Nutrients · 2023Article
- Websites about, not for, adolescents? A systematic analysis of online fertility preservation information for adolescent and young adult cancer patients.Research square · 2023Article
- Interest in fertility status assessment among young adult survivors of childhood cancer.Cancer medicine · 2023Article
- Fertility-related worry among emerging adult cancer survivors.Journal of assisted reproduction and genetics · 2022Article
- Feasibility, acceptability, and outcomes of a pilot intervention facilitating communication about family building between patients with inherited cancer risk and their partners.PEC innovation · 2022Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
5 authors at 3 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
purposeThe purpose of this research was to describe the challenges young adult childhood cancer survivors (ACCS) experience of living with an unknown fertility status.
methodsIn this qualitative study, we analyzed data from in-depth interviews with 25 ACCS (15 females, 10 males) using content-driven inductive thematic analysis and constant comparative techniques.
resultsThree themes provide insight into ACCS' experiences of living with an uncertain fertility status. (1) The marked psychological burden, which included fear, worry, anxiety, and sadness, was ubiquitous. (2) Romantic relationships were negatively affected and entailed fear of disappointing one's partner, the difficulty of discussing fertility issues, and shying away from romantic relationships. (3) Communication challenges with healthcare providers were apparent across the cancer trajectory, made worse by provider knowledge gaps and dismissal of fertility concerns. (4) Well-known gender stereotypes about pregnancy and childrearing were replicated, while the emotional and life impacts that uncertain fertility could exert on males were minimized.
conclusionThis study provides beginning insights into the experiences of young ACCS as they navigate an unknown fertility status and highlights existing gaps in fertility-related healthcare services. IMPLICATIONS FOR CANCER SURVIVORS: Uncertain fertility has implications for survivors' wellbeing that remain poorly addressed by the existing structure of cancer survivor and fertility services. Assessing and addressing the fertility-related needs of ACCS will continue to be a vital component of patient-centered care in the future, and research to develop comprehensive support, resources, and processes of care are vital to meet this priority need.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.