Evidence map›Paper›PMID 32612848›Full record

ArticleJournal of rehabilitation and assistive technologies engineering

Ethical research engagement with Indigenous communities.

Jennifer Billan, Danette Starblanket, Sadie Anderson, Marlin Legare, Mikayla Caroline Hagel, Nathan Oakes, Mackenzie Jardine, Gail Boehme, Ethel Dubois, Orval Spencer and 3 more

Abstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in Journal of rehabilitation and assistive technologies engineering. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 8 papers.

0numbers the graph read from it
0cells of the map it votes in
8citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

8 citing papers in PubMed.

  1. Article
  2. Review
  3. Review
  4. Article
  5. Article
  6. Article
  7. Perceptions, Beliefs, and Experiences of Asians and Micronesian Islanders on Family Health History Genetic Cancer Screening Community Outreach.Journal of cancer education : the official journal of the American Association for Cancer Education · 2021
    Article
  8. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

13 authors.

Jennifer BillanDepartment of Community Health and Epidemiology, College of Medicine, University of Saskatchewan, Regina, Canada.ORCID https://orcid.org/0000-0002-8676-6407
Danette StarblanketDepartment of Community Health and Epidemiology, College of Medicine, University of Saskatchewan, Regina, Canada.
Sadie AndersonDepartment of Community Health and Epidemiology, College of Medicine, University of Saskatchewan, Regina, Canada.
Marlin LegareDepartment of Community Health and Epidemiology, College of Medicine, University of Saskatchewan, Regina, Canada.
Mikayla Caroline HagelDepartment of Community Health and Epidemiology, College of Medicine, University of Saskatchewan, Regina, Canada.
Nathan OakesDepartment of Community Health and Epidemiology, College of Medicine, University of Saskatchewan, Regina, Canada.
Mackenzie JardineDepartment of Community Health and Epidemiology, College of Medicine, University of Saskatchewan, Regina, Canada.
Gail BoehmeFile Hills Qu'Appelle Tribal Council, Fort Qu'Appelle, Canada.
Ethel DuboisFile Hills Qu'Appelle Tribal Council, Fort Qu'Appelle, Canada.
Orval SpencerFile Hills Qu'Appelle Tribal Council, Fort Qu'Appelle, Canada.
Millie HotomaniFile Hills Qu'Appelle Tribal Council, Fort Qu'Appelle, Canada.
Betty McKennaDepartment of Community Health and Epidemiology, College of Medicine, University of Saskatchewan, Regina, Canada.
Carrie BourassaDepartment of Community Health and Epidemiology, College of Medicine, University of Saskatchewan, Regina, Canada.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

introductionCanada's colonial policies and practices have led to barriers for Indigenous older adults' access to healthcare and research. As a result, there is a need for Indigenous-led research and culturally safe practices. Morning Star Lodge is developing a training module to assist AgingTech researchers on ethical, culturally safe ways to engage Indigenous communities. This includes exploring Indigenous health research, community-based partnerships, reciprocal learning, and cultural safety; this is presented through a case study on ethically engaged research.

methodsMorning Star Lodge developed a research partnership agreement with File Hills Qu'Appelle Tribal Council and established a Community Research Advisory Committee representing the eleven First Nations within the Tribal Council. The work designing the culturally safe training module is in collaboration with the Community Research Advisory Committee.

resultsBuilding research partnerships and capacities has changed the way the eleven First Nation communities within File Hills Qu'Appelle Tribal Council view research. As a result, they now disseminate the knowledge within their own networks.

conclusionsIndigenous Peoples are resilient in ensuring their sustainability and have far more community engagement and direction. Developing culturally safe approaches to care for Indigenous communities leads to self-determined research. Culturally safe training modules can be applied to marginalized demographics.

Indexed as

ageingcommunity-based partnershipscultural safetyEthically engaged researchIndigenous community-based research

Identifiers

PMID32612848
PMCPMC7309372

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.