Evidence map›Paper›PMID 32609747›Full record

ArticlePloS one2020

Diversity and inclusion for the All of Us research program: A scoping review.

Brandy M Mapes, Christopher S Foster, Sheila V Kusnoor, Marcia I Epelbaum, Mona AuYoung, Gwynne Jenkins, Maria Lopez-Class, Dara Richardson-Heron, Ahmed Elmi, Karl Surkan and 7 more

Abstract readScoping Review
In one paragraph

Article in PloS one, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 201 papers, 6 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
201citing papers in PubMed, 6 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

201 citing papers in PubMed, 6 syntheses or guidelines pooled it.

  1. Pooled it
  2. Pooled it
  3. Pooled it
  4. Pooled it
  5. Pooled it
  6. Results and Strategies for a Diversity-Oriented Public Health Monitoring in Germany.International journal of environmental research and public health · 2022
    Pooled it
  7. Trial
  8. Addressing Health Disparities through Community Engagement in Artificial Intelligence-Driven Prevention Science.Prevention science : the official journal of the Society for Prevention Research · 2026
    Review
  9. Article
  10. Best practices for using biological data in psychological research.Journal of mood and anxiety disorders · 2026
    Review
  11. Article
  12. Article
  13. Article
  14. Article
  15. Associations between genetic ancestry and allergic outcomes at 10 years among Black children.Annals of allergy, asthma & immunology : official publication of the American College of Allergy, Asthma, & Immunology · 2026
    Article
  16. Article
  17. Article
  18. Article
  19. Review
  20. Article

141 more citing papers are in PubMed but not listed here.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

17 authors.

Brandy M MapesVanderbilt Institute for Clinical and Translational Research, Vanderbilt University Medical Center, Nashville, Tennessee, United States of America.ORCID 0000-0001-6365-347X
Christopher S FosterOffice of the Director, National Institutes of Health, Bethesda, Maryland, United States of America.
Sheila V KusnoorCenter for Knowledge Management, Vanderbilt University Medical Center, Nashville, TN, United States of American.
Marcia I EpelbaumCenter for Knowledge Management, Vanderbilt University Medical Center, Nashville, TN, United States of American.
Mona AuYoungScripps Whittier Diabetes Institute, Scripps Health, San Diego, California, United States of American.
Gwynne JenkinsOffice of the Director, National Institutes of Health, Bethesda, Maryland, United States of America.
Maria Lopez-ClassOffice of the Director, National Institutes of Health, Bethesda, Maryland, United States of America.
Dara Richardson-HeronOffice of the Director, National Institutes of Health, Bethesda, Maryland, United States of America.
Ahmed ElmiOffice of the Director, National Institutes of Health, Bethesda, Maryland, United States of America.
Karl SurkanMassachusetts Institute of Technology, Cambridge, Massachusetts, United States of America and All of Us Research Program Participant Representative.
Robert M CroninDepartment of Biomedical Informatics, Medicine, and Pediatrics, Vanderbilt University Medical Center, Nashville, Tennessee, United States of America.ORCID 0000-0003-1916-6521
Consuelo H WilkinsDepartment of Medicine, Vanderbilt University Medical Center, Nashville, Tennessee, United States of America.
Eliseo J Pérez-StableNational Institute on Minority Health and Health Disparities, Bethesda, Maryland, United States of America.
Eric DishmanOffice of the Director, National Institutes of Health, Bethesda, Maryland, United States of America.
Joshua C DennyDepartments of Biomedical Informatics and Medicine, Vanderbilt University Medical Center, Nashville, Tennessee, United States of America.
Joni L RutterNational Center for Advancing Translational Sciences, National Institutes of Health, Bethesda, Maryland, United States of America.ORCID 0000-0002-6502-2361
All of Us Research Program

Funding

Technology to Empower Changes in Health (TECH) Network Participant Technologies CenterU24OD023176 · OD · SCRIPPS RESEARCH INSTITUTE, THE · PI TOPOL, ERIC JEFFREY · 2016 to 2022
$204.7M
Enhancing All of Us Data Resources for Nutrition Precision Health: the All of Us Data and Research CenterU2COD023196 · OD · VANDERBILT UNIVERSITY MEDICAL CENTER · PI GLAZER, DAVID, HARRIS, PAUL A. · 2016 to 2022
$143.7M
Scripps Translational Science InstituteUL1TR002550 · NCATS · SCRIPPS RESEARCH INSTITUTE, THE · PI TOPOL, ERIC JEFFREY · 2018 to 2022
$28.9M
PMI Participants Preparatory/Prototyping InitiativeOT2OD023132 · OD · VANDERBILT UNIVERSITY MEDICAL CENTER · PI CRONIN, ROBERT M, DENNY, JOSHUA C. · 2016 to 2017
$5.2M
Using Patient-Centered Guidelines in a Technology Platform to Improve Health Care in Adults with Sickle Cell DiseaseK23HL141447 · NHLBI · VANDERBILT UNIVERSITY MEDICAL CENTER · PI CRONIN, ROBERT M · 2018 to 2022
$921k
NCATS NIH HHS UL1 TR002550NHLBI NIH HHS K23 HL141447NIH HHS OT2 OD023132NIH HHS U24 OD023176NIH HHS U2C OD023196
6 · The paper itself

Abstract

The All of Us Research Program (All of Us) is a national effort to accelerate health research by exploring the relationship between lifestyle, environment, and genetics. It is set to become one of the largest research efforts in U.S. history, aiming to build a national resource of data from at least one million participants. All of Us aims to address the need for more diversity in research and set the stage for that diversity to be leveraged in precision medicine research to come. This paper describes how the program assessed demographic characteristics of participants who have enrolled in other U.S. biomedical research cohorts to better understand which groups are traditionally represented or underrepresented in biomedical research. We 1) reviewed the enrollment characteristics of national cohort studies like All of Us, and 2) surveyed the literature, focusing on key diversity categories essential to the program's enrollment aims. Based on these efforts, All of Us emphasizes enrollment of racial and ethnic minorities, and has formally designated the following additional groups as historically underrepresented: individuals-with inadequate access to medical care; under the age of 18 or over 65; with an annual household income at or below 200% of the federal poverty level; who have a cognitive or physical disability; have less than a high school education or equivalent; are intersex; identify as a sexual or gender minority; or live in rural or non-metropolitan areas. Research accounting for wider demographic variability is critical. Only by ensuring diversity and by addressing the very barriers that limit it, can we position All of Us to better understand and tackle health disparities.

Indexed as

Cultural DiversityBiomedical ResearchCohort StudiesDemographyEthnicityFemaleHumansMaleMinority GroupsPopulation HealthPrecision MedicineRacial GroupsUnited States

Identifiers

PMID32609747
PMCPMC7329113

What OpenQuestion holds

Textmetadata
LicenceCC0
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.