Evidence map›Paper›PMID 32607715›Full record

ArticleJournal of cancer survivorship : research and practice2020

Identifying patients' priorities for quality survivorship: conceptualizing a patient-centered approach to survivorship care.

K Holly Mead, Sarah Raskin, Anne Willis, Hannah Arem, Sarah Murtaza, Laura Charney, Mandi Pratt-Chapman

Abstract read
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In one paragraph

Article in Journal of cancer survivorship : research and practice, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 27 papers, 5 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
27citing papers in PubMed, 5 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

27 citing papers in PubMed, 5 syntheses or guidelines pooled it.

  1. Pooled it
  2. Coping strategies for fear of cancer recurrence among breast cancer survivors: a systematic review and thematic synthesis of qualitative studies.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2025
    Pooled it
  3. Pooled it
  4. Survivorship care for people affected by advanced or metastatic cancer: MASCC-ASCO standards and practice recommendations.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2024
    Pooled it
  5. Electronic Health Interventions for Patients With Breast Cancer: Systematic Review and Meta-Analyses.Journal of clinical oncology : official journal of the American Society of Clinical Oncology · 2022
    Pooled it
  6. Baseline characteristics of survivors, primary care clinicians, and oncologists in a randomized trial of a shared care, self-management intervention for cancer survivors.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2025
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  11. Living With and Beyond Cancer With Comorbid Conditions: Qualitative Insights to Understand Psychosocial Support Needs.Health expectations : an international journal of public participation in health care and health policy · 2024
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  15. Advancing Patient-Centered Cancer Survivorship Care: Evaluation of a Dissemination Project.Journal of cancer education : the official journal of the American Association for Cancer Education · 2023
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors.

K Holly MeadMilken Institute School of Public Health, George Washington University, 950 New Hampshire Ave., Washington, DC, 20052, USA. khmead@gwu.edu.ORCID 0000-0001-9103-2929
Sarah RaskinL. Douglas Wilder School of Government and Public Affairs, Virginia Commonwealth University, 1001 W. Franklin St., Richmond, VA, 23284, USA.
Anne WillisCystic Fibrosis Foundation, 4550 Montgomery Ave., Bethesda, MD, 20814, USA.
Hannah AremMilken Institute School of Public Health, George Washington University, 950 New Hampshire Ave., Washington, DC, 20052, USA.
Sarah MurtazaMilken Institute School of Public Health, George Washington University, 950 New Hampshire Ave., Washington, DC, 20052, USA.
Laura CharneyMilken Institute School of Public Health, George Washington University, 950 New Hampshire Ave., Washington, DC, 20052, USA.
Mandi Pratt-ChapmanGeorge Washington University Cancer Center, George Washington University, 2600 Virginia Ave., NW, #300, Washington, DC, 20037, USA.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

purposeThis study explored cancer survivors' experiences with and priorities for cancer survivorship care to describe a patient-centered approach to quality survivorship care.

methodsWe conducted 22 focus groups with 170 adult survivors of breast, prostate, and colorectal cancer from six cities across the country and online. We used thematic analysis to identify participants' principles and priorities for quality survivorship care.

resultsBased on our analysis of a limited group of cancer survivors, we identified two core principles that underlie participants' expectations for survivorship care and 11 practice priorities that reflect opportunities to improve patient-centeredness at the individual, interpersonal, and organizational levels. The principles reflect participants' desire to be better prepared for and equipped to accept and manage their chronic care needs post-cancer treatment. The priorities reflect practices that patients, providers, and cancer centers can engage in to ensure survivors' goals for post-treatment care are met.

conclusionsResults from the study suggest the need to expand conceptualization of high-quality survivorship care. The survivor principles and practice priorities identified in this study challenge the field to organize a more patient-centered survivorship care system that empowers and respects patients and provides a holistic approach to survivors' chronic and long-term needs. IMPLICATIONS FOR CANCER SURVIVORS: Quality cancer survivorship care must reflect patients' priorities. The findings from this study can be used to develop a patient-centered framework for survivorship care that can be used in conjunction with quality guidelines to ensure survivorship care is organized to achieve both clinical and patient-centered outcomes.

Indexed as

Concept FormationSurvivorshipCancer SurvivorsDelivery of Health CareFemaleHumansMaleMiddle AgedNeoplasmsOutcome Assessment, Health CarePatient-Centered CareQuality of Health CareCancer survivorship carePatient-centeredQualitySurvivors principles and priorities

Identifiers

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.